Thank you, Colleen. Your posts were informative and helpful….I’ll follow up.
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Mentor John suggested I post here. I've been dealing with Anti-MAG neuropathy for many years, but am now wondering if anyone has had any experience with stem cell therapy for neuropathy….curious if Mayo is using that therapy for neuro issues.
Hi John, Thanks for your prompt and helpful reply. My neuropathy is caused by an autoimmune issue that is attacking my myelin sheath….diagnosis of Anti-MAG (Antibodies to Myelin Associated Glycoproteins). It's a fairly rare diagnosis and I've had difficulty finding much helpful information on treatment. My symptoms are electrical current sensations in arms and legs, often to the point of numbness, loss of balance and muscle loss. I've had most success with adjusting lifestyle issues….cleaning up my diet, regular exercise, getting enough sleep, etc., along with supplementation. My Mayo doctors suggested trying an anti-depressant or anti-seizure drug, but so far, I've decided against that route. The last couple of months I've noticed an increase in the intensity of symptoms, so am interested in newer treatments other than drugs.