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About

First Name
Barbara

State/Province
CA

Health Interests
Blood disorders, Cancer, Eye disorders

Posts (38)

1 day ago · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

My hgb was 6.7 on Sunday ; so I was given a 12:30 appt. on Tues; no one seemed to be in a hurry.I had 2 bags, and just barely made the 5 :pm closing.My veins are 87.5 old so was started slowly and sped up as they knew I could take it.

Thu, May 2 12:02am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Yesterday my vein gave out in my left arm;so they had to switch to the right arm. I have to be 7.1 or lower before getting an infusion;maybe the old veins have something to do with that.I am going to test in 2 weeks the next time;since 5.6 does scare everyone (except me).I'm a tough ole bird!

Sun, Apr 28 10:43pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I had a blood test today.The only one where I pay attention is the hgb @5.6 .Tues I will get 2 bags;next time I will try 2 wks again

Fri, Apr 12 9:16pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Surry I was so long getting back. My 2week blood infusion ran into 3,and it was so low the caller tried desperately to get me to go to the ER. I have had enough of that place! 1st thing Monday morning worked out OK. Your new forum sounds great since I believe knowledge takes precedence over support.Be weary of the CLL group—they are not like us.

Tue, Mar 19 10:32pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

What does it mean "successful" transplants? not showing in the blood test any more? or living over 6 years, the maximum anyone has survived B-PLL so far? I was given 2 bags today.Why? According to the nurse I should bring my lunch on days I am getting 2 bags. Is that all? I'm sorry,I'm really,really tired today.I do believe the way we are being treated has a lot to do with our age difference and how long I have had it. HANG IN THERE!!!

Sat, Mar 9 1:59am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I went in on the 5th and again only one bag of blood. There is the possibility the reason has to do with the fact that I was on antibiotics up to that period.We'll see in 2 weeks, if all goes right .It's good that your Doctors are being cautious ,but still trying whatever is possible and correct. I have read that stem cell is not right for B-PLL; so don't even worry. Always check the internet before you start to think either pro or con.My fractured hip is healing very quickly. I can now put my full weight on my left foot,but due to ten years of arthritis ,my right knee is a problem that can't be treated due to the B-PLL.

Mon, Mar 4 1:10pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Venetoclax is used for CLL according to 2 web cites I have checked.

Sat, Feb 23 6:58pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I'M BACK ! It's amazing what 2 bags of that red stuff will do. My best friend aka caregiver took me in and my boyfriend showed up later. Just before they unplugged me ;I started giggling. My 2 friends did likewise,but to this day we could never figure out why.I guess it has something to do with 2 more weeks of living.