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About

First Name
Barbara

State/Province
CA

Health Interests
Blood disorders, Cancer, Eye disorders

Posts (62)

Tue, Oct 15 10:41pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Skimpy was putting it mildly! My red cells were 1.72 @Hgb 5.0 this Sunday.There was a shortage of nurses and they tried to put me off until Tues ,but I convinced them it wasn't a good idea.They (whoever they are) decided I was right so they ordered 3 bags….2 on Monday and 1 on Tues.I think I am going to do a lot of sleeping tomorrow

Thu, Oct 3 11:46pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I think I am joking because was given 10+which is my boyfriend's type. His leukemia is almost as bad as ours.It's the other way around. If you have fluid retention, your veins can't handle 2 bags.I'm learning.This one bag looked awfully skimpy…..later.

Mon, Sep 30 12:46am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

HGB was 6.2 again.The only 1 bag of infusion seemed to work better in 2 wks than the usual 2…could it have anything to do with the fact that it was O+ ? I doubt it,but let's see what tomorrow will bring.

Thu, Sep 26 11:35pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I eat lots of tomatoes & orange juice because I love them,not because I believe any vitamin will cure B-PLL.Have you heard that green chilies have 3 times the vitamin C as orange juice…..maybe hearsay ;need checking. More after my test on Sunday.

Wed, Sep 18 4:39am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Didn't have to go to the hospital at hgb 6.2,but was given 1 bag again,I don't know how I'll make 2 wks on 1 bag.

Tue, Sep 10 1:50am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I believe it was just 7 hrs. this time; I have never yet stayed over night.More later when I can think straight. The most important function of oxygen is the brain;the last thing I want to lose.

Fri, Sep 6 12:21am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

We've been talking cats enough;time to get back to business. On 8/18 my HGB was6.3 so I was given only 1 bag of infusion really due to heavy fluid retention.One bag does not do it.By 9/1 my hgb was 5.5,WBC 2.9.RBC 1.93.R platelets 73. A call from the hospital insisted that I come in.I said before I would never do that,but I gave in. Now I say again I will never do that!!!!!!

Sun, Aug 11 6:31pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Sydney the greeter cat lived at the vet office and had his own room at night.When they hired a groomer she insisted on her own room which took precidence over Sydney even though he had the honor of being named after the vet himself.We felt very special to have Sydney come and live in our home.He became a groomer cat and took care of my husband's crew cut.