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Oct 20, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

OMG!! Me too! Not diabetic. Have sfn. numbness, pain, cramps, the whole freakin shebang. I am 54. My shoes are also very not fashionable, so much so that they have earned the nickname 'frankenboots'. They are new balance that also have cushioning and are sized to fit orthotics as well

Jul 28, 2018 · Allodynia in Neuropathy

they haven't tried the ivig on me yet, just my brother. right now i'm on nucynta (tapentadol), pregabalin and a compound cream that contains ketamine and lidocaine, among other things

Jul 26, 2018 · Allodynia in Neuropathy

I've had it about 5 years. They haven't decided exactly what I have yet. Been seeing different drs for about 4 yrs, Had emg and they confirmed I also have small fibre peripheral neuropathy in hands and feet. They're still trying to figure out why. My brother has similar issues, only his are worse. He's been diagnosed with sjogren's and has ivig treatments every 3 weeks.. I see another rheumatologist at the end of August.

Jul 22, 2018 · Allodynia in Neuropathy

Yes, sadly. My problem is it hurts my feet just to have the sheet touch them