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Fri, Oct 25 2:08pm · Long QT Syndrome in Heart Rhythm Conditions

It can be caused by a lot of medications. Some Antiarrythmics can cause it. I had to have an ablation because the antiarrythmics caused me to have it when I took them for AFib. You might need the predisposition to get it from the medications but if you have it the list of medications you have to stay away from is quite daunting. That is one of the reasons they keep you in the hospital when you start antiarrythmics, to make sure you don't have that issue.

Sat, Aug 31 9:55am · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

That was very well said. I am at 49 and take care of myself but do not stress on it. I think the fitness tracker is a good idea. It will give more peace of mind. I want to enjoy whatever life I am given not worry about what may happen. Today is a beautiful day for a bike ride….

Tue, Jul 9 1:15pm · Long QT Syndrome in Heart Rhythm Conditions

I was recently hospitalized because of A-Fib and during that stay found out I have Long QT. I had never heard of it before but now know that it can cause sudden death. Can anyone tell me anything they have experienced. I thought I was tough after my aneurysm diagnosis and then A-Fib but now another area thrown into the mix has me kind of rattled. I am sure there are more people out there. I will be seeing my cardiologist next week and Mayo has a lab just for Sudden Death Arrhythmia but I want a "living with" perspective.

Thu, May 2 7:20am · Ascending aorta dilation in Aortic Aneurysms

I had the same type of issue. It went from 4.7 to 4.9 but they said it was "no change". I asked about that and they said it depends on where it was measured exactly so the number varies. The important part is when they compare the previous to the current and they say "no change". Frustrating, but it is what it is so we just wait. And live a good life..

Wed, Feb 20 6:14am · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

I take 150 and have been at 200. The Cardiologist said that it takes large doses sometimes to do what it needs to do. It depends on how your body metabolizes it. Even at my dose I have no side effects and my heart rate is in the 40s. They don't want it to go higher as I also have 2 aneurysms. They said that as long as I do not get light headed from the dose 40s is fine.

Thu, Jan 24 6:25am · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

Hi I am Lynn. I have had PACs for years. I have been tested thoroughly to make sure they are good beats, just spaced oddly. I also have 2 thoracic aortic aneurysms so they watch me closely. The rhythm is what actually led to finding the aneurysms. I tell doctors that my heart beats to its own drummer . I think no matter how often they tell me they are benign it will bother me. I can always hear them. Mine are most often in the evening or morning and seem to be connected to burping. 1 burp and I am in a funky beat for hours. The doctors do not believe they are related but it always happens the same way. Does anyone else have this experience. They will hopefully (ablation) fix the rhythm when they fix the aneurysms. Falling asleep listening to your own personal hip hop beat is just not fun…

Nov 9, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

I have been on the metoprolol for years and have not had any problems at all. My dose is 150. It took care of my tachycardia and irregular beats. If I miss it I remember because the beats change. It really made my life much better as I did not have my "funky beats" to worry about. I had heard negative remarks too but none of the side affects happened to me. Yeah! The cardiologist told me it was like a fortress built around my heart to protect it. Even when I do something that raises my heart rate it keeps it from going too high. I hope it works as well for you.

Nov 7, 2018 · Thoracic aortic aneurysm in Aortic Aneurysms

I have none of the normal "causes" for this, it is a mystery. It is hard to find any information that is not "doctor targeted". Even the doctors don't talk about the "journey". You are either ready for surgery or not ready. The part that we all deal with in between finding out and getting it fixed seems to be ignored as if it is not important. I don't know about the rest of you but it is important enough to be on my mind a lot. It is nice to have this connection to people that have the same thing on their mind and understand that it is a big deal.