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Sat, Jan 4 7:17pm · Heart transplant recovery: What to expect? in Transplants

Hi Dennis. I am entering my third year post TX on January 7. I definitely felt muscle loss in my body and also felt stronger- I know it sounds like a contradiction but I think recovery is so individual. Part of the need for my transplant was the fact that my heart was getting only 30% of the needed oxygen to my muscle masses. I was working out prior to the transplant, (my insurance allowed me to do this through cardiac rehab after I needed cardioversion), and I was on IV meds. I was in "good shape' after surgery and was out of my bed later in the day. I was walking around the ICU the next day. I felt great. But I could tell I lost muscle control in my 'behind'… and in my arms. So my first business was to try to recover this. I was 63 at the time of my surgery and I still feel unconditioned at times and have to 'start over'. At times, things don't seem to progress with exercise, but I persevere. Hope this helps!

Dec 29, 2019 · This and That and Talk - My Transplant in Transplants

At my last posttx check up, one of my appointments was with a dermatologist. I was informed that transplant recipients have 60 to 240% higher chance of cancer. While I sometimes don't trust statistics!, this is about my health and future, so every precaution helps.

Dec 28, 2019 · This and That and Talk - My Transplant in Transplants

All recipients of organ transplants take powerful anti-rejection meds that affect our immune systems. Post- transplant patients have a higher percentage of likelihood to get cancer. Here in Arizona skin cancer is a real possibility. Sunscreen is a must. Hope that answers your question. Other folks may have additional information.

Dec 7, 2019 · Heart Transplant: Experiencing Cardiac Allograft Vasculopathy (CAV) in Transplants

@gk3399 Hi there! I am nearly three years out from my transplant and am always concerned about what can occur in my newly acquired heart and the rest of my body, so I appreciate you bringing this condition to our attention. I had not heard about CAV. Did the doctors or medical personnel explain the diagnosis to you? If it is a developing condition, what are your options for treating it? I hope you continue to post here. My best to you.


Oct 19, 2019 · Protecting patient from getting infections from me & others in Caregivers

Sure did …As soon as it was out and let my heart transplant nurse coordinator know. All set for the season. Here's to a healthy fall and winter!

Aug 20, 2019 · Airport X-ray results in Transplants

I have an xray every time I'm at Mayo or even at my PCP or pulmonologist (I had sarcoidosis) if I have a cold. Nothing has shown up. Always all clear.

Aug 20, 2019 · Airport X-ray results in Transplants

Hi @contentandwell. I have experienced the same situation. Just to and from Chicago during this past week. The xray machine found something in my shoulder area on the way to Chicago and at OHare there was something in my upper thigh groin area. Never happened before my transplant. Honestly, I thought it was a fluke, but I saw the images myself.

Aug 12, 2019 · What can I Expect for my Lung Transplant Review? in Transplants

Hi Kevin. I live in Tucson so I was traveling back and forth to Phoenix so they split up my days between a month and a half. By the time I finished my last test and went to my follow-up appointment, they were prepared to discuss listing me for a transplant. I had to have special blood labs taken because I lived in South America when I was younger. They had to send out those tests to Rochester and we waited for results for a little over ten days. You review may not be as long. There was an earlier consideration to do a heart/lung transplant because I had sarcoidosis in my right lung, but it was not necessary. Best wishes and prayers your way. Let us know how everything works out or if you have any other questions, feel free to ask. 🙂