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Posts (3)

May 25, 2018 · Is chronic reactivated EBV different from chronic active EBV? in Infectious Diseases

My husband was diagnosed with CAEBV about a year ago & our doc referred us to an ID specialist. Unfortunately, we didn't know the guy was semi retired, & we couldn't seem to get in. So now, he's finally gotten in to see another ID Dr., who is running all the same labs as before. So we have to get the diagnosis confirmed. Was hoping to find out more info…
Anyway, initially he had mono symptoms for several weeks & then seemed to be doing really well for a while. Here lately, he feels bad, and I've noticed he looks pale when he exerts himself, tho his blood work has not shown he's anemic. Anyway, so glad there is a forum here and hoping to find some good treatment options for him.

May 24, 2018 · Treatment for chronic epstein barr in Infectious Diseases

My husband developed CAEBV about a year ago and we've been trying to get in to see an ID Doc for almost a year. I have a feeling its a waste of time though because we don't have the best and brightest in my town. there is very little information and research on this virus in the medical literature, unfortunately, BUT they are looking for candidates for studies. I'm discussing that possibility with my husband. in the meantime ANY helpful strategies to deal with this debilitating illness is greatly appreciated!

May 24, 2018 · Treatment for chronic epstein barr in Infectious Diseases

unfortunately, the way CAEBV works, antivirals don't work – at least that's what I've found in my research.