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Fri, May 17 11:26pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Does anyone have experience with coccydynia? I've had it for four years but I've had other troubles that required my attention first. Now that those other problems are quiet, I need to get help to sit. I've used a coccyx seat for years and it just seems to press on the areas that are sore. I don't know if it's better with or without the cushion. The Mayo web page listed a specialist in the Pelvic Floor Dysfunction clinic, which is no longer available?? So my PCP referred me to gynecology. It sounds like they'll check me for reproductive issues and then send me to the pain management clinic for a group session. My doctor wants me to get a steroid injection. So I'm having to go out of my network for a caudal block. And then she's sending me to the Midwest Tailbone Treatment Center. Am I wasting my time going to gynecology?

Wed, May 15 8:31pm · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

I had two kidney surgeries and a couple years later developed chronic pain from my waist down to my knees. The theory now is that it's fascial restrictions. I've been seeing a myofascial release therapist and have improved but my kidney is still stuck. However, with the warmer weather, I've been walking more and my leg pain is coming back again. My tailbone pain is flared too. I can't get any pain relief except to lay on my left side (no significance there, just a frozen shoulder on the right). I would rather be a couch potato and avoid the pain than cause it to flare so horribly again. I used to work on my feet but now I have a desk job. I think that helped quiet things down too. Google John Barnes myofascial release therapist to find someone that does scar release work.

Wed, May 15 8:19pm · Pain in the butt - Can't sit down in Chronic Pain

Have you had ischial bursa injections? If the diagnosis is ischial bursitis, why not inject and see if it helps? I don't know if bursitis shows up on imaging. I've got pain in my tail bone. I go in for a caudal block tomorrow. Prior to that I had piriformis injections. That didn't help. They thought maybe it could be sciatica.

Dec 20, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@karen00 CBD oil has vitamin K in it. That would thickens your blood. If you have a PE already, you should not be taking it without talking to your anticoagulation clinic. I'm assuming you are on a blood thinner due to the clot.

Dec 19, 2018 · Chronic pain after partial nephrectomy and UPJ reconstruction? in Kidney & Bladder

@treglaser I've been throwing money at my problem for 3 years. It's so frustrating. I've been through orthopedics (hip labral repair, and gluteus medius tear repair), my PCP, Pain/Spine clinic, four different physical therapy practices, a surgeon that works for the MN Vikings football team for a second opinion, a spine specialist in a different practice for a second opinion, regenerative medicine doctor (stem cell transplant), three different massage therapists, two chiropractors, etc. You know what I'm talking about. I've been diagnosed with labral tears (one side repaired), gluteus medius tear (repaired), bulging disc, mild foraminal spinal stenosis, sacroiliac joint dysfunction, sacral pain, and myofascial pain disorder. Now that I know my road to recovery, I will pursue it. With that being said, I will tell you that my myofascial release therapist says that a lot of her patients have fibromyalgia, and find relief (not a cure). Just wanted you to know my cure and journey and to encourage you to pursue relief. And also, all massage therapists are not the same. If you pursue myofascial release, make sure they are John Barnes trained or something similar.

Dec 19, 2018 · Chronic pain after partial nephrectomy and UPJ reconstruction? in Kidney & Bladder

My urologist said it's possible that I have nerve tethering because they cut through a lot of tissue. No suggestions for diagnostics or treatment (not very helpful). I have had 5 sessions of myofascial release therapy and the stabbing pain in my left thigh is gone today!!! Before I had PT, I walked on the treadmill for 30 minutes to see what else was different. Nothing was changed on the right but on the left I only had two spots that were painful. One behind my knee and one by my hip. I had a very experienced physical therapist see me for a 1:1 consult today. He did see me at one other time when my therapist pulled him in to look at me. He's the one that suggested I may have scarring around my kidney and my therapist should focus on fascial release. That's when I took that information and ran with it. Today, as I laid on the table face up, he placed one hand under my back and one on my abdomen. He closed his eyes and just carried on a conversation with me about what I've been doing since I saw him last and why I was moving differently than when I first saw him. His scribe whispered What are you doing? He said he was feeling how my liver and kidney moved with my breathing. He said there's a definite lag between the two. Then had me flip over and he examined my back, hips and legs. My fascia is tight over my kidney on the right side, down my back, across my hip and into the front of my leg. (Right where my pain is) And he then proceeded to pinpoint the areas on my left leg that still had pain!! I said where have you been the last three years and why wasn't this diagnosed earlier before it snow balled out of control. His response: Because doctors don't lay hands on their patients today like they need to. He said I can be cured without further surgery. Hallelujah!!!!

Nov 21, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@teress221 I had two kidney surgeries. A couple of years later I developed chronic pain in my low back, sacrum, buttocks, hips and thighs. I've had two surgeries on my hip thinking that was the source of this new pain. After three years of therapy, injections, and testing, insurance change, having to change my therapist, etc. A fresh set of eyes and new perspective has come to light. The theory is that the kidney surgeries caused scar tissue and nerve entrapment, the source of my pain. I wonder if the chest tube caused the same perfect storm inside of you. The recommended treatment has been myofascial release. This is done with manipulative therapy. I had been getting a weekly (and extremely painful) deep tissue massage, but that's not what myofascial release entails. It's a very light touch. The first time I thought it was voodoo and what kind of quack is this. Laughingly I asked what I could expect over the next few days. She said I wasn't going to like her very well. Actually I HATED her over the next few days. I couldn't walk more than 90 seconds at a time. Then I got back to my baseline. While my husband was away from home for a vacation, I had my girlfriends over for a board game night. I spent the day cleaning my house and cooking and setting up card tables. By that night, I was having another flare in my pain. Back to 90 second walks again. I've seen this therapist a total of four times now. I can't believe how much improvement I've made since my first time!! One day last week and one day this week, I woke up with ZERO pain. Usually I toss and turn trying to get comfortable and when I can't take it any more I get up for the day. The first time I woke up with no pain, I literally thought I was dreaming. I was looking at my alarm clock thinking this is such a wonderful dream and I don't want to wake up, wishing myself back to sleep. Then my alarm went off and I realized I was awake! Of course my pain started up again once I was up and moving but what ecstasy to have those few moments after years of constant pain. I am a believer in this massage therapist! Problem is her availability. I only get in once every other week or so. There is an intensive program in Sedona AZ that I'm looking into. You get 3 hours daily of this therapy and it's 2-3 weeks long. I am so anxious for this pain to end and I am seeing a light at the end of the tunnel. I'm ready to sprint to the finish line! I am trying to figure out how I can make it work with my finances, insurance, and time off from work. If you haven't tried myofascial release therapy, find a John Barnes trained therapist and give it a few sessions. They should be able to tell you at the first session if they feel scarring and can help you. I mention John Barnes therapists because many massage therapists believe they're trained in myofascial release but it's not the same thing. I've received both. There's a difference. If you're close to Sedona, I've heard that you can book appointments for a single session instead of the intensive program.

Nov 21, 2018 · Have you tried to quit smoking while undergoing treatment? in Cancer

I quit smoking because I couldn't have surgery while smoking due to impaired healing. Several months after surgery I started again. Then my dad died of lung cancer. He wasn't a smoker or exposed to second hand smoke. With genetics like that, the writing is on the wall. I quit again. After three years, my doctor didn't tell me but put it in my medical record that I had spinal stenosis. When another practitioner told me what she couldn't tell me to my face, I didn't cope well. I was angry that she wouldn't tell me, sad because of the diagnosis because I knew disability was very near, fearful over concerns of how to support myself and my family. I started smoking in June and now I'm quitting again. Chantix is my drug of choice. I think I've tried everything on the market and that's just what works for me.