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Sun, Sep 20 4:04pm · Would you recommend Rochester best Mayo Facility for Epilepsy? in Epilepsy & Seizures

I agree Jake, the Mayo Clinic is the best.

Fri, Jan 3 4:20am · Has anyone been seen at one of the Mayo Epilepsy clinics? in Epilepsy & Seizures

From our experience, after seeing many doctors and so called specialists in Boston, our treatment at the Mayo Clinic in Rochester was an answer to our prayers. My 10 year old son experiencing up to near a dozen seizures a day. All the medications experiments didn’t help. The doctors here in Boston didn’t have any options for him but to keep trying different drug combinations. After 1 visit to Rochester, they had a plan and explained exactly what was going on. Although every case is different, his surgery was very successful. We just celebrated 10 years of seizure and medication freedom. I highly recommend the Mayo Clinic. Best of luck.

Dec 28, 2019 · Would you recommend Rochester best Mayo Facility for Epilepsy? in Epilepsy & Seizures

It probably was me. My son had surgery on his left frontal lobe about 9 years ago. The surgery was very successful. We weened him off his medication and he’s been seizure free since his surgery. We spent several months getting treatment at Boston Children’s Hospital. It was a nightmare, to say the least.

Dec 28, 2019 · Would you recommend Rochester best Mayo Facility for Epilepsy? in Epilepsy & Seizures

Leonard. We are from Boston, which I thought at the time was the best place for us to be for treatment. It wasn’t. Far from it. We heard about treatment at Mayo, Rochester so we contacted them. Almost immediately we found them to be far more advanced than any of the doctors we’ve seen. After visiting there for epilepsy testing, we knew we were in the right place. We scheduled brain surgery for my then 10 year old son. It was the best thing we’ve ever done. The Rochester Mayo was amazing. Heaven on earth as far we’re concerned. Wish you the best of luck.

May 26, 2019 · Seizures and surgery: views on removing part of brain to stop them? in Epilepsy & Seizures

From our experience, each med affects each patient differently. But all seem to have side affects too.

Jan 1, 2019 · Seizures and surgery: views on removing part of brain to stop them? in Epilepsy & Seizures

Thanks Jake. Part of the left frontal lobe was removed. My son was at high risk of SUDEP and didn’t respond to medication. We’re convinced if we continued care in Boston that my son would be severely affected if not worse. The doctors at Mayo were completely baffled by what the BCH doctors were doing. It was a very difficult decision to have surgery. Yes it was a gamble but we were fighting for his life. He is off medication.

Jan 1, 2019 · Seizures and surgery: views on removing part of brain to stop them? in Epilepsy & Seizures

Hi. My son was diagnosed with epilepsy at the age of 9. We went through an extremely difficult time at Boston Children’s Hospital. The were literally scratching their heads. Their only course of action was to keep trying different drug cocktails. His side effects were to most of the meds were horrendous. We finally found help at the Mayo Clinic in Rochester, MN. They knew right away what to do. My son had brain surgery at the age of 10. They removed a section of his brain they said was about the size of his fist. They made no guarantee that he would be seizure free, but it’s been 8 years and he’s been seizure free since the surgery and is doing well.

Sep 17, 2018 · Daughter with Newly Diagnosed Generalized Absence Seizures in Epilepsy & Seizures

He is medication free also. Had a very successful brain surgery in Rochester Mayo clinic