I had my surgery 2.5 years ago. I am slowly feeling better. From what I understand, I am cancer free. If I get recurrence, then genomic testing would be done.
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I had sarcoma (undifferentiated pleomorphic spindle cell) between two ribs possibly caused by radiation after a lumpectomy 18 years previously. I recommend going to a sarcoma center like Mayo, MD Anderson, Dana Farber, or MSK. It’s very important to assemble a team for your care with multiple disciplinary backgrounds. It is extremely rare but increasing due to breast conserving treatment. Ask for genomic testing on the tumor. I’ve had 5 surgeries including bilateral mastectomy because I developed a different cancer in the same breast a few months later. I didn’t truly understand how aggressive this is, I just wanted it out. I know it’s overwhelming and we are walking through a groundbreaking time in this type of cancer.
I was diagnosed last year with a radiation induced pleomorphic sarcoma from breast cancer treatment 18 years prior. 2 biopsies and two surgical excisions were done. They removed 2 ribs, stage 2 with no treatment available. Just monitoring my lung with several 4mm and less nodules. Now I’ve been diagnosed with triple negative breast cancer in the same breast. I’m having bilateral mastectomy tomorrow then chemo in a few weeks. The oncologist is considering adding a drug to the chemo that has been shown to cover the sarcoma but only about 5% effectiveness. I have lots of decisions to make. I’m going to both Kellogg cancer center (with tumor board consult at Mayo) and now my breast surgery is at Northwestern downtown Chicago