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Kristen

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WI

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Posts (13)

Tue, Oct 15 11:09pm · Ewing Sarcoma in fibula of 16yo girl in Cancer

Hello. I'm sorry that your cousin has to go through this. She's young and strong, she can beat this thing! Chemo was draining from the moment in ran in my veins. Extra rest, hard candies to suck on for the iphosphomide/etopiside, Lots of visitors-even when she says she's fine, a hobby that doesn't take much energy for the low days, I'm happy to answer any questions you may have. Stock up on hats and or scarves- fun ones.

Mon, Aug 19 5:40pm · High grade Glioma - What questions should I ask? in Brain Tumor

@eileen61 I am sorry that your employer is being difficult so soon. I am afraid that I am not much help though. My employers worked with me and I am easily replaced as FMLAs were priority for the float/resource nurses to cover. I did not do much research on the internet because I see on an almost daily basis how misleading it can be. My family/friends were asking when I was first diagnosed so I did go onto the American Cancer Society website to see what treatment options would be, but this still was not enough to know what the plan would be. I took everything one day at a time. Do what you can today to prepare for what may happen tomorrow. I totally understand how it makes you feel out of control. I hope that your treatment goes well and is successful. Please keep us up to date.

Mon, Jul 8 9:12pm · Ewing's Sarcoma in Cancer

Thanks @colleenyoung ! I've been doing ok. I'm back to work full time, but need to be better about my exercises to restrengthen. No evidence of disease on last scans, so planning for the future!

Wed, Apr 17 9:23pm · Vascular wound from radiation for sarcoma of the pectoralis major in Cancer

I'm so sorry Alan. This puts you in an impossible position if you don't want surgery. Unfortunately if there is tissue that is necrotic, it's in the way of the tissue that could heal and an incubator for future infections. I understand you have already been through a lot, but surgery is your best solution. Have they gone through what would happen if it is left alone?

Wed, Apr 17 7:50pm · Vascular wound from radiation for sarcoma of the pectoralis major in Cancer

@alangodel please clarify: is it an avascular wound- meaning no blood supply to it? Then is surgery being proposed to also promote healing in this area to reconnect tissue that still has good blood supply?

Fri, Mar 22 6:54am · Ewing's Sarcoma in Cancer

@madstrong you can PM me any time- just to vent, for advice, or whatever. I'll try to respond within a day or two. You or your daughter.

Thu, Mar 21 6:55pm · Ewing's Sarcoma in Cancer

I love the name: @madstrong!! I can't imagine it being my child, it was rough on me as an adult. I will keep you and your daughter in my prayers. One day at a time, one treatment at a time. Make a list of the things she wants to do when she gets through treatments. Those types of things were huge for me while i was going through rough times.

Mon, Mar 18 6:46pm · Ewing's Sarcoma in Cancer

Ewing's and Ewing's-like Sarcoma patients discussion, restart with where you are with your diagnosis/treatment/recovery.

I'll start. I'm Kristen, diagnosed with Ewing's sarcoma in November of 2017. Finished my last chemo October of 2018 and currently back to work full time. Scans have been clean since March 2018, now just monitoring every 4 months. My hair is coming back nicely and my strength and stamina grow stronger daily.

@suzanneb @zaruhi @cali2007 and @erikahamilton Care to share, question or comment?