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Thu, Oct 31 6:22am · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

@derbeltal -I had chills when I started rifampin. Went off it for awhile, then started again. Same problem. My doc then took me off it and no issues. Mine was definitely medication related.

Wed, Oct 16 6:20am · Out of network coverage at Mayo for MAC in MAC & Bronchiectasis

@jkiemen And were you pleased with the care you received and follow up? Was any expensive testing done ( ct scan, etc] and was that covered out of network?

Sun, Oct 13 6:50pm · Out of network coverage at Mayo for MAC in MAC & Bronchiectasis

Has anyone had any success getting out of network coverage at Mayo for a second opinion? Tips regarding this process? Any opinions regarding Dr. Johnson at Mayo in Jacksonville? I currently have MAC and bronchiectasis-sputum positive after a year on two of the Big 3. I feel fine except for a cough.

Tue, Oct 8 8:10pm · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

@windwalker -I haven’t even been diagnosed for two years yet-I did have a second CT scan before I completed the year of antibiotics and the pulmonologist thought there was some improvement-I will definitely keep track of that!

Mon, Oct 7 6:20am · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

@128128terry11t I was on two antibiotics for a year (did not tolerate rifampin) and 2 of 3 sputum samples were positive. I have decided not to resume antibiotics at this time as minor coughing is my only symptom.

Mon, Sep 9 7:18pm · In shock after MAC diagnosis in MAC & Bronchiectasis

@ling123 @windwalker My story is very similar to ling123 symptom wise-except my ID doc put me on the big 3-I did not tolerate rifampin which the cultures showed were specific to my MAC. After a year on the other two, cultures still positive. I cough some, but work full time, exercise daily, and can hike in the mountains! I’m going back at the end of the month to ID- I will not go back on the meds at this time.
And yes-I’m an avid gardener- now raising Monarch 🦋!

Tue, May 28 8:38pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@irene5@america I was changed from rifampin to rifabutin-I did not tolerate it-got achy and feverish. Went off it for awhile and tried again-same issue.

Sun, Mar 17 8:27am · health at diagnosis in MAC & Bronchiectasis

I too was advised by my pulmonologist to stop nebulizing the 7% saline as I wasn’t coughing and and I had recurring hemoptysis. He did say to keep it available if I need it down the road! He thought it was drying me out too much.