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Sun, Apr 12 4:41pm · Have MAC and coughing up blood in MAC & Bronchiectasis

@marciefincher I coughed up significant blood about two and a half years ago out of nowhere. Went to urgent care- this led to my diagnosis of bronchiectasis and MAC. Has happened about 4 times since then- nebulizing 7% saline seems to bring it on now, since I have stopped that I have not had any problems. I have been told to go to the ER if it is more than 1/4 cup.

Tue, Mar 31 7:51pm · Tired and having a fever normal after a few weeks on Big 3 for MAC? in MAC & Bronchiectasis

@joanden I had fever with Rifampin- ended up having to stop taking it…

Mon, Mar 9 8:08pm · Clearing lung technique I found by accident in MAC & Bronchiectasis

@shooei -Interesting that you are not able to use the 7% saline due to hemoptysis- I too have tried it a few times and ended up coughing up blood again! I was advised to stop-I have been using the Aerobika with some success. My doc said he may want me to try 3% saline down the road.
I too appreciate everyone’s input on this site.

Dec 24, 2019 · Happy Holidays in MAC & Bronchiectasis

Yes, I truly appreciate this group-most of what I know regarding bronchiectasis and MAC I have learned here! My insurance is approving a visit to Mayo in Rochester for a second opinion regarding treating or not. Praying for good weather as it is in mid January! Happy Holidays to all.

Oct 31, 2019 · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

@derbeltal -I had chills when I started rifampin. Went off it for awhile, then started again. Same problem. My doc then took me off it and no issues. Mine was definitely medication related.

Oct 16, 2019 · Out of network coverage at Mayo for MAC in MAC & Bronchiectasis

@jkiemen And were you pleased with the care you received and follow up? Was any expensive testing done ( ct scan, etc] and was that covered out of network?

Oct 13, 2019 · Out of network coverage at Mayo for MAC in MAC & Bronchiectasis

Has anyone had any success getting out of network coverage at Mayo for a second opinion? Tips regarding this process? Any opinions regarding Dr. Johnson at Mayo in Jacksonville? I currently have MAC and bronchiectasis-sputum positive after a year on two of the Big 3. I feel fine except for a cough.

Oct 8, 2019 · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

@windwalker -I haven’t even been diagnosed for two years yet-I did have a second CT scan before I completed the year of antibiotics and the pulmonologist thought there was some improvement-I will definitely keep track of that!