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Posts (43)

Dec 3, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@merpreb Hi, Merry! This reminded me to let you know that all went well at my check up the week before last. I can go to 4 months before the next one, which will be just shy of 2 years since surgery. If all good on that one, I can switch to twice a year. So, thankful at Thanksgiving here. Good thoughts to you on yours.

Dec 3, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@scoop2365 So sorry you have these worries at this family time of year but you found a great group of people here. My two cent thought is to remember that if it is cancerous that no matter what options you are given that you very likely will want a second opinion and hopefully from a completely separate facility. I did not understand until it happened to me how we only had a handful of hospitals in our state with decent marks for lung cancer surgery and my doctors were not at one of them. (And, as a friend pointed out, the places that advertise the most are often not one, either.) It's a stressful time, but it helps when you have confidence in the team that handles everything. Prayers to you both.

Nov 7, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@merpreb I got busy and stopped following these posts but they started to return to my email in time to know I needed to jump in! My next quarterly visit to Mayo comes up in about 10 days- still far enough off that I'm just thinking about the "roadtrip" and restaurants part and not the tests! And you?

Nov 5, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@rimaronye Last year I went through 4 rounds of Cisplatin & Alimta and remember reading in "the fine print" that how you feel is not related to how it is working, even though people always think if they are sick it must be working or if you aren't then it must not be working. I was like you with very few issues so I remember being glad to see there wasn't a correlation. Anyone on your oncology team should be able to confirm that for you- I recall those who did the injections were well versed in side effects of the different meds, such as most people with my combo didn't have hair loss (which I had just assumed would happen and was happily surprised to not experience!)

Sep 15, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@reibur1951 Sorry to hear how you keep finding out how much fuller your plate can get. Glad to hear your sticking with the experts, even with the distance and additional pulls on your time lately. May you sleep well at night not just from exhaustion but from knowing how you've put your sick friend's best interest first!

Jul 20, 2019 · CT lung cancer screening in Lung Cancer

@joelars You don't need an oncologist to order the annual low dose CT scans that are now on the same list of routine screening for people between 55-80 who currently smoke or quit within the last 15 years as colonoscopies are for people over age 50. And, when mine starting abnormal my doc ordered them more frequently and then turned me over to a specialist when it got to that point. One thing that I've concluded is that the more incompetent the practice the more skeptical the recipient becomes. I second what Merry says about looking elsewhere. You should be able to look through American Cancer Society's recommendations . Or, I've found that US New seems to publish good reports. Until it affected me I never realized how poor most of the hospitals in my area were. A neighbor with breast cancer went from one very local hospital who I wouldn't trust with most things to a place in a nearby state who always advertises in our area and passed away not long after. When I was diagnosed and saw in that report how poorly that place was rated compared to one very good one not far away it infuriated me that their advertising would so easily mislead that woman and her family. In our case, we decided that since we had the ability to drive 7 1/2 to Mayo we chose it. And, I have found that no one has the doom and gloom you are experiencing because the doctors do keep track of why you're there and spend quality time going through things together. Of course, wherever you go people are human but in my opinion, yours is a repeating pattern in people's comments when they'd been to places not specializing in lung cancer.

Jul 18, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@merpreb Thanks, Merry! No inhalers at this point. And, I knew from my PA at Mayo that from the lung cancer perspective that not returning to smoking was the biggie and for exercise to focus on the cardio stuff, for the lungs. So, that makes sense that COPD would run the same tracks. Guess we can't change the past so need to "stay on the straight and narrow" going forward, huh? Lol.