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Aug 6, 2019 · IVIG infusion treatments for Bronciectasis in MAC & Bronchiectasis

I really recommend Hizentra that you can give yourself once a week. You get smaller dose at time than IVIG but then you don’t get much reaction

Aug 2, 2019 · IVIG infusion treatments for Bronciectasis in MAC & Bronchiectasis

Hi. After MAC diagnosis, I had immunology tests, and discovered my IgG was low–below ref range. I was started on Hizentra weekly infusions about a year ago, which I administer myself subcutaneously, and now I test in normal range for IgG. HIzentra is IgG from pooled blood sources. I used to shiver a lot and had to take hot baths in afternoon to stop. Now the shivers have gone away. Docs don't pay any attention to my report of shivers, but nurses say lots of MAC patients have them. I also do not get as many Upper Respiratory infections. Note– I did not have terribly low IgG, and a second immunologist said she would not have prescribed the HIzentra. It has made my hair thinner (I blame it anyway). And it has goofed up an annual test I do which is a biomarker for a certain type of thyroid cancer because I now have thyroid antibodies — so I will go off Hizentra for a month to do the test.

Feb 6, 2019 · Nitric Oxide study in MAC & Bronchiectasis

I was going to be in the study in Vancouver in Fall 2018 but when I told them I can't cough up sputum ((my MAC was diagnosed after bronchoscopy) they didnt wan me– too difficult for them to test me after the NO study

Oct 14, 2018 · CBD oil and depression/anxiety in Depression & Anxiety

I am really interested in people’s responses to CBd oil but I really do not like some people trying to use this forum to sell stuff from them self to other members. Not you. Previous posters

Aug 18, 2018 · Untreated MAC in MAC & Bronchiectasis

I have gone to UCLA for MAC and gotten excellent treatment.


Would you please post names of tinctures you used, in addition to Devils Club. We have plentiful DC in forest near where I live, and I have made tea from it long time ago , hate the taste pre MAC. I guess I’ll try it again. But I’d appreciate knowing names of other two African ones . Thank you.

May 24, 2018 · Stem Cell Therapy? in MAC & Bronchiectasis

I saw an ad for stem cell therapy for COPD and other lung diseases featuring picture of attractive female doc in white coat with fair amount of cleavage showing. That pic was enough to discredit their whole procedure.

May 8, 2018 · Locations for treatment in MAC & Bronchiectasis

I just had immunoglobulins done and IgG is low, so doc recommended I go to immunologists and look at getting "replacement" (IV infusion ). Has anyone else had that done? Hospital is still doing susceptibility testing on the MAC they've grown from my lungs from bronchoscopy on April 4 . I'm going to start mechanical airway clearance in meantime–salt nebs, saline nasal rinse . The blockages in lungs are pretty localized to a couple of places . Ive had symptoms for 10 years but they were worried re malignancies until now, bc I have had two, and both can metastasize to lungs . Now they've biopsied and ruled that out, laid that worry to rest and are focusing on MAC.,