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Posts (11)

Wed, Feb 6 7:32am · Nitric Oxide study in MAC & Bronchiectasis

I was going to be in the study in Vancouver in Fall 2018 but when I told them I can't cough up sputum ((my MAC was diagnosed after bronchoscopy) they didnt wan me– too difficult for them to test me after the NO study

Oct 14, 2018 · CBD oil and depression/anxiety in Depression & Anxiety

I am really interested in people’s responses to CBd oil but I really do not like some people trying to use this forum to sell stuff from them self to other members. Not you. Previous posters

Aug 18, 2018 · Untreated MAC in MAC & Bronchiectasis

I have gone to UCLA for MAC and gotten excellent treatment.

Aug 6, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Would you please post names of tinctures you used, in addition to Devils Club. We have plentiful DC in forest near where I live, and I have made tea from it long time ago , hate the taste pre MAC. I guess I’ll try it again. But I’d appreciate knowing names of other two African ones . Thank you.

May 24, 2018 · Stem Cell Therapy? in MAC & Bronchiectasis

I saw an ad for stem cell therapy for COPD and other lung diseases featuring picture of attractive female doc in white coat with fair amount of cleavage showing. That pic was enough to discredit their whole procedure.

May 8, 2018 · Locations for treatment in MAC & Bronchiectasis

I just had immunoglobulins done and IgG is low, so doc recommended I go to immunologists and look at getting "replacement" (IV infusion ). Has anyone else had that done? Hospital is still doing susceptibility testing on the MAC they've grown from my lungs from bronchoscopy on April 4 . I'm going to start mechanical airway clearance in meantime–salt nebs, saline nasal rinse . The blockages in lungs are pretty localized to a couple of places . Ive had symptoms for 10 years but they were worried re malignancies until now, bc I have had two, and both can metastasize to lungs . Now they've biopsied and ruled that out, laid that worry to rest and are focusing on MAC.,

May 8, 2018 · Locations for treatment in MAC & Bronchiectasis

Univ of Oregon supposed to have good program and they are starting study with using two instead of 3 abx on MAC

Apr 29, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Is this pain in hip related to bronchiectasis / MAC? I have arthritis in left hip too.