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Posts (10)

Oct 14, 2018 · CBD oil and depression/anxiety in Depression & Anxiety

I am really interested in people’s responses to CBd oil but I really do not like some people trying to use this forum to sell stuff from them self to other members. Not you. Previous posters

Aug 18, 2018 · Untreated MAC in MAC & Bronchiectasis

I have gone to UCLA for MAC and gotten excellent treatment.


Would you please post names of tinctures you used, in addition to Devils Club. We have plentiful DC in forest near where I live, and I have made tea from it long time ago , hate the taste pre MAC. I guess I’ll try it again. But I’d appreciate knowing names of other two African ones . Thank you.

May 24, 2018 · Stem Cell Therapy? in MAC & Bronchiectasis

I saw an ad for stem cell therapy for COPD and other lung diseases featuring picture of attractive female doc in white coat with fair amount of cleavage showing. That pic was enough to discredit their whole procedure.

May 8, 2018 · Locations for treatment in MAC & Bronchiectasis

I just had immunoglobulins done and IgG is low, so doc recommended I go to immunologists and look at getting "replacement" (IV infusion ). Has anyone else had that done? Hospital is still doing susceptibility testing on the MAC they've grown from my lungs from bronchoscopy on April 4 . I'm going to start mechanical airway clearance in meantime–salt nebs, saline nasal rinse . The blockages in lungs are pretty localized to a couple of places . Ive had symptoms for 10 years but they were worried re malignancies until now, bc I have had two, and both can metastasize to lungs . Now they've biopsied and ruled that out, laid that worry to rest and are focusing on MAC.,

May 8, 2018 · Locations for treatment in MAC & Bronchiectasis

Univ of Oregon supposed to have good program and they are starting study with using two instead of 3 abx on MAC


Is this pain in hip related to bronchiectasis / MAC? I have arthritis in left hip too.

Apr 27, 2018 · MAC, Pseudomoas Aeuroginosa, Bronchiectasis in MAC & Bronchiectasis

I'm also interested in saline nebs and would be grateful for info. I was diagnosed with bronchiectasis about 8 years ago, after having a lot of CT scans as part of followup for 2 malignancies. Chest CTs showed pulmonary nodules and tree-in-bud. After nonstop coughing last year, I had super D electromagnetic navigation bronchoscopy at UCLA in April 2018 (pretty amazing procedure); they biopsied nodule (not malignant, yay) and did about 20cultures which showed 3 bacteria in lung–MAC, strep and another. A year ago I was incidentally at a place in austria where they had saline chamber and salt sauna. I felt great afterward.