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Posts (25)

Nov 13, 2018 · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

It’s Captainkenny. Have not been active on Mayo Connect for several months now for a couple reasons: GCA (temporal arteritis) sharing morphed into lots of exotic autoimmune diseases beyond my interest, and I was really turned off be several posts from obviously non-medical professionals, offering medical advice, which is irresponsible.
I was fortunate to have been quickly diagnosed and confirmed by biopsy with Temporal Arteritis only two weeks after my symptoms—headaches, tender to the touch forehead and temples, and jaw pain so intense I couldn’t chew my cereal. That was 16 months ago. Started on 40 mg Prednisone and symptoms were gone in 2-3 hours without return, except for two minor headache scares. Now down to 7 mg Prednisone and Methotrexate, see RA every 4 months and blood lab every 3 months. I’m 82 and workout at gym most days and walk an hour every day, so I’m grateful exercise doesn’t cause me problems because it’s been an important part of my lifestyle for many years. Good luck to all you GCA afflicted and stay positive.

Jun 2, 2018 · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

Hey Oregongirl, It will be a year in July for me too since my Temporal Arteritis (TA) diagnosis, and still no conclusive treatment for my itchy rash that I have been doctoring with my regular MD, four dermatologists, and a rheumatologist. Two biopsies and lots of blood lab work, and tried several meds without success. My delima: Dermatologist thinks it’s part of my TA (I do too), and Rheumatologist doesn’t think it’s related. Just consulted with my MD about going to Mayo Clinic, he suggested I try another dermatologist first. So He wrote an urgent referral and I have a Wednesday appointment.

May 25, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

Thanks John. I took your direction and we’ll see what happens.

May 25, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

Hi Colleen, Thanks for your welcoming me to Mayo Clinic Connect. I have shared a few times and need your help in navigating the system. I was diagnosed July 2017 with Giant Cell (temporal) Arteritis, and have appreciated pertinent shares on GCA, but so often get sidetracked to another unrelated group. Apparently I am not correctly unsubscribing from groups I’m not interested in following. Thanks for your help.

May 12, 2018 · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

I only needed my biopsy on right side too. It was a simple procedure done by an ENT.

May 12, 2018 · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

I was sure I fit the profile for GCA when I heard it it was more prevalent in Scandinavian countries. My father was born in Sweden, my mother’s folks were also born there, and there are lots of scandinavians up here in Minnesota.

May 12, 2018 · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

I am presently using Rx for Triamcinolone ointment 2X a day or as needed which provides some relief of itching; however, new lesions still present regularly. Thanks for the Mometasone Fuorate cream tip which I will mention to my doctor. Did your doctor seem confident your rash was linked to GCA, or was he just trying it to make the determination?

May 12, 2018 · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

We are an easy 1-1/2 hr drive from Rochester, MN.