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Nov 15, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi, My name is Sandy and I am new to the group. My Mom has MAC and has been on the big 3 for 2 months. She has lost her ability to see color in one eye, so they discontinued the ethambutol. Now, they want to add amikacin but we are not sure about this. I've been reading that some people lose their voice,while on this medicine .Also, vertigo is a possible side effect. My mom has a history with vertigo already. I was just wondering if anyone out there who has taken (inhaled) amikacin (Arikace) could give us the benefit of their experience. Was it worth it from your perspective?

Apr 12, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

HI. I'm new to this discussion group. My 73 year old mom was recently diagnosed with MAC and Bronchiectasis. She lives in Ocala, FL and we are trying to decide where to take her for further care. Her current pulmonologist wants to refer her to the University of Florida – Shands Hospital because they have a micobacterial clinic there. I have been reading the reviews from previous patients and their biggest complaint is the lack of communication between doctors. That's a pretty big flag for me. I wonder if anyone could tell me their experiences with Mayo. If you need a Pulmonologist and and Infectious Disease doctor and a Rheumatologist do the doctors work together? I should also mention that we are considering going to the Mayo Clinic in Jacksonville, FL