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Thu, Jan 3 5:10pm · Xifaxan in Digestive Health

@jackiem95 I’m taking Xifaxan to prevent hepatic encephalopathy, a side effect of advanced liver disease. It helps prevent the buildup of ammonia in my brain.

Thu, Jan 3 3:43pm · Xifaxan in Digestive Health

@drpepper I’ve been taking Xifaxan for just over a year and a half. It’s something my insurance will not cover without an accompanying Lactulose prescription. My hepatologist says it works better than lactulose, but hey it’s so expensive I’m happy to take the lactulose too.

Oct 16, 2018 · It's not all about the MELD Score in Transplants

I’m glad it’s rising, too. My appointments are every six months, but they’ve got me coming in December this time rather than January. I go to Rochester and it’s only 1.5 hours.

Oct 16, 2018 · It's not all about the MELD Score in Transplants

@rosemarya I’ve been tired from the start. However, the exhaustion came upon me this summer. I teach 24 hours per week and seem to do nothing but rest so I can work!

Been on the list since June 2017. Had a MELD of 26 at one point.

Oct 15, 2018 · It's not all about the MELD Score in Transplants

Got my three month MELD update today: up from 11 to 16. Makes me feel better as I was concerned it wouldn’t change much. Dealing with exhaustion now – resting in all my spare time so I can keep going to my part-time job. Thinking about going on disability through my employer.

Sep 5, 2018 · It's not all about the MELD Score in Transplants

@amyintucson I don’t need tucking at the hernia site. I wouldn’t mind if they’d get rid of the extra skin due to weight loss!

Sep 4, 2018 · It's not all about the MELD Score in Transplants

@contentandwell Thanks. I’m doing what I can and not doing what I shouldn’t!

Sep 3, 2018 · It's not all about the MELD Score in Transplants

My newest twist: I have developed an inguinal hernia that can’t be fixed until after the transplant. With a MELD of 11 it’s a long time of being careful and watching what I do ☹️