Hi just saw an MPN specialist and like you I have been told I may be ET or border line PV. I have been on hydrea from my local Hemotologist for 7 weeks and platelets went from 805 to 330.
But the specialist said my Hemoglobin and Hematocrits are at the end of high normal. So he wants to do a sono and a BMB. I understsnd ET and PV can mimic each other. I am JAK2 positive.
Can I ask what your numbers were at disgnosis and how you are responding?
I see this was posted a year ago.