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Posts (9)

Apr 13, 2018 · Transplant Evaluation - What to expect in Transplants

@mlmcg That’s something I need to start doing, exercise. I have an exercise bike I’d like to start using again if I can figure out a time to do it. I work full time and by the time I get home I only have about an hour and a half before I have to hookup to dialysis (I do 10 hours every night) so I’m finished in time to get up in the morning for work. That time before hookup is spent feeding the dogs and trying to eat some dinner. So during the week it seems like my life is just work and dialysis. 

Apr 13, 2018 · Transplant Evaluation - What to expect in Transplants

@mlmcg Nepro comes in chocolate, vanilla, strawberry, and butter pecan. I prefer the vanilla and butter pecan. I have lost some weight but not too much. My dietician suggested adding some things to the shakes my husband makes me. Like peanut butter, honey, protein powder. We make them with vegan ice cream and coconut milk. Yum 🙂

Apr 12, 2018 · Gastroparesis with severe symptoms! in Digestive Health

I had gastroparesis 24 years ago before I had a kidney/pancreas transplant. Then 23 years of no symptoms but then my kidney failed and I had to go dialysis and a few months ago I was hospitalized with uncontrollable vomiting. They said I had gastroparesis and put me on Reglan. I am leery of the side effects but right now that with the low-fat low-fiber diet is helping me. I rarely have an appetite though and there are days when all I can eat is liquid or soft foods. I do wish I could be hungry and eat a normal meal!

Apr 12, 2018 · Transplant Evaluation - What to expect in Transplants

That's a great idea. Thank you! I am going to get one.

Apr 12, 2018 · Transplant Evaluation - What to expect in Transplants

@mlmcg Yes I have a dietician at the dialysis center I see once a month. I just spoke to her the other day because my labs came back with my potassium a little high even though it's usually low. So I have to back off the greek yogurt a bit which I love. I drink Nepro which is a protein drink for dialysis patients.

Apr 12, 2018 · Transplant Evaluation - What to expect in Transplants

@cehunt57 Yes I was started on Reglan last month. It has helped me but I will ask my doctor about the erythromycin because I know Reglan can have bad side effects. I am doing a low fiber diet and have not had any nausea in a while but there are some days where I know if I force myself to eat I will be. On those days I resort to just protein drinks and smoothies. I was eating yogurt, cottage cheese and mashed potatoes but in my last lab report my potassium was a little high (it's usually low) so I have to eat those very sparingly now. I don't eat meat so it's hard because all the food I used to eat (beans, nuts, salads) are off the table now.

Apr 11, 2018 · Transplant Evaluation - What to expect in Transplants

@bamagirlgina thank you for the information! It’s nice to hear from someone who went through it. 

Apr 11, 2018 · Transplant Evaluation - What to expect in Transplants

Thank you @rosemarya for your welcome and support. I really appreciate it! I have received my schedule of appointments and am busy noting on it when I have to fast and times I can eat. I didn’t have to do all these tests in 1994 so while I’m familiar with the appts with all the doctors a lot of this is new territory for me. I was blessed to have 22 years of good health after my transplant and now it’s hard adjusting to this new life. I often just feel lost. So it’s nice to be around people who understand.