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Posts (16)

Sat, Aug 17 12:48pm · Exercise during chemo in Cancer: Managing Symptoms

Unless your doctor specifically says not to, I would recommend something outdoors. During treatment, we spend way too much time indoors. Getting out and noticing all that nature has to offer is good for the spirit. Walking is a great start, and I would recommend body weight exercises. Not sure of your conditioning or what you used to do, but there are senior classes that are chair exercises which are generally body weight or light weights. I’d move as much as your body allows. Wishing you well!

Sun, Jul 14 2:10pm · Exercise during chemo in Cancer: Managing Symptoms

You need to check with your doctor to see if you are immune compromised or not. They can answer from your most recent labs. From my cancer experience, I was immune compromised initially. The doctors absolutely told me when I was not. While I was, they said to stay away from gyms along with a plethora of other places. Good for you having the energy to go to the gym! Take the opportunity to be active as you feel able. I wish you well.

Tue, Jun 4 8:09am · Exercise during chemo in Cancer: Managing Symptoms

I had a serious chemo routine and during that time, I did some exercises with bands at home. Going to the gym was a no-no as I was immune compromised for probably half of my regime. I had infused chemo, oral chemo and a Biologic. The Chemo treatments lasted for a year. What I did as often as I could was walk outdoors. I am a big advocate of walking outdoors which lifted my spirits 100% of the time. When I was pronounced in remission and discontinued treatment, I have to say I was intimidated to go back to the gym. I was a five day a week gym rat prior to cancer. I hired a trainer that I thought was compassionate, but would push me. Nine month later I was competing in an event called the Sampson Challenge. It’s a ten event competition with things like rowing, sand bag run, tire flipping, swimming, etc. My goal was to only to finish! I worked with my trainer and took a class with others preparing for the competition. Not only did I finish, I came in 2nd in my age group. I worked out with my trainer once a week, and did stuff on my own the rest of the time. Getting strong and feeling good about myself really helped me get back to a “normal” life. During diagnosis and treatment, my world revolved around illness, and to anyone reading this, you know that gets OLD!

Wed, May 29 9:25pm · Monthly Mission: Why did you become a Champion? in Mayo Clinic Champions

I found this site when I was already well into remission, and wished I knew about it when I was going through treatments. I would have loved to have had others to talk with about the way I was feeling. I received my initial treatment at Mayo and was then sent to my home state to get treatment. Mayo saved my life, and I was treated so wonderfully, I wanted to share that experience with anyone it might help. When I was going through the treatment, I just put one foot in front of the other and made it through. It wasn’t until later that I realized what I had been through. It is also to talk with people that know exactly what you’ve been through. It’s a great network!

Thu, May 23 6:08am · Biting Nails in Just Want to Talk

Dear Lotsofpain,
I don’t know if you are male or female, but I’d suggest getting a gel nail manicure. It makes it difficult to bite your nails. This is only a suggestion if you are not immune compromised.

Wed, May 8 11:12am · best way to shower or bath after a port is placed in Colorectal Cancer

Since your original post is dated April 13, you have probably figured it out already. If not, there are shields that cover the port for showering. You have to shower quickly but certainly you can get cleaned up. Hair is a little harder. You can either use a hand held shower head or do it in the sink. I'm guess you are already a pro since your post is a month old. Ports are so awesome for treatment and lab work. So much easier than getting poked! Good luck.

Mon, Mar 4 10:25pm · Reaction from Rituximab in Blood Cancers & Disorders

myla, I did find my dosage. It was 500 mg. I got dizzy on my first outing, and they stopped it and gave me a a bolus. Once my BP came back, they delivered it at 200ml/hr. Your post got me looking through my old records. They were so comprehensive at Mayo. I had to return to my home state and receive treatment there with the Mayo protocol. Records no where as detailed.

Mon, Mar 4 9:36pm · Reaction from Rituximab in Blood Cancers & Disorders

myla, sorry I couldn’t find my records. It’s been about two years now. I want to say that at first it took four hours, but ramped down to 90 minutes. Stay the course; it’s worth the fight. Sending you good juju.