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Posts (19)

Tue, Sep 24 4:44pm · Contrast in MRI adverse effects in Blood Cancers & Disorders

Thanks Justin. You bring up some good points. I left Mayo in Feb 2016 with a protocol in hand for my local oncologist. It calls for MRIs every quarter the first two years, semi annually the next five years while in remission. Once I hit five years, I’m considered cured. My doctor and I have discussed my reaction to ProHance. Yes, the ProHance goes In through a vein. I believe at my next appointment in October, I will be asking the question of early detection vs these negative side effects. From the time I was diagnosed, I’ve had 16 MRIs with contrast. I know it takes a toll on the kidneys. I feel like I’d recognize the symptoms if my cancer were to reoccur.

Fri, Sep 20 4:47pm · Contrast in MRI adverse effects in Blood Cancers & Disorders

I have regularly scheduled MRIs with contrast. The contrast is called ProHance. Every time the contrast goes in, I vomit, and once I stop I can go in the tube and continue my MRI. The last two times I’ve had a MRI, I’ve gotten a terrible rash with bumps and streaks on my arm. I look a bit like a druggie. The first time, my oncology thought I had Shingles and put me on an antiviral medicine. Since it happened a second time, neither of us thinks it is Shingles. Has anyone had this experience, and are there any alternatives? After my MRI, I am wiped out and experience nausea the rest of the day. I seriously dread my MRI. I just completed year three of remission, so I still have two more years to experience this.

Fri, Sep 13 7:17am · Uterine Fibroids in Women's Health

I had uterine fibroids and had a hysterectomy at age 41. Post surgery, the doctor said my uterus looked like a 4.5 month pregnancy in size. I used to call it my tumor baby before it came out because I was so extended in my belly. I had my uterus and cervix removed and kept my ovaries. I felt so much better when it was gone plus no periods. My doctor told me that I would feel better because I didn’t know how bad I was feeling. It creeps up on you. He was so right. I was so happy I had that hysterectomy. It was 17 years ago. No regrets!

Sat, Aug 17 12:48pm · Exercise during chemo in Cancer: Managing Symptoms

Unless your doctor specifically says not to, I would recommend something outdoors. During treatment, we spend way too much time indoors. Getting out and noticing all that nature has to offer is good for the spirit. Walking is a great start, and I would recommend body weight exercises. Not sure of your conditioning or what you used to do, but there are senior classes that are chair exercises which are generally body weight or light weights. I’d move as much as your body allows. Wishing you well!

Sun, Jul 14 2:10pm · Exercise during chemo in Cancer: Managing Symptoms

You need to check with your doctor to see if you are immune compromised or not. They can answer from your most recent labs. From my cancer experience, I was immune compromised initially. The doctors absolutely told me when I was not. While I was, they said to stay away from gyms along with a plethora of other places. Good for you having the energy to go to the gym! Take the opportunity to be active as you feel able. I wish you well.

Tue, Jun 4 8:09am · Exercise during chemo in Cancer: Managing Symptoms

I had a serious chemo routine and during that time, I did some exercises with bands at home. Going to the gym was a no-no as I was immune compromised for probably half of my regime. I had infused chemo, oral chemo and a Biologic. The Chemo treatments lasted for a year. What I did as often as I could was walk outdoors. I am a big advocate of walking outdoors which lifted my spirits 100% of the time. When I was pronounced in remission and discontinued treatment, I have to say I was intimidated to go back to the gym. I was a five day a week gym rat prior to cancer. I hired a trainer that I thought was compassionate, but would push me. Nine month later I was competing in an event called the Sampson Challenge. It’s a ten event competition with things like rowing, sand bag run, tire flipping, swimming, etc. My goal was to only to finish! I worked with my trainer and took a class with others preparing for the competition. Not only did I finish, I came in 2nd in my age group. I worked out with my trainer once a week, and did stuff on my own the rest of the time. Getting strong and feeling good about myself really helped me get back to a “normal” life. During diagnosis and treatment, my world revolved around illness, and to anyone reading this, you know that gets OLD!

Wed, May 29 9:25pm · Monthly Mission: Why did you become a Champion? in Mayo Clinic Champions

I found this site when I was already well into remission, and wished I knew about it when I was going through treatments. I would have loved to have had others to talk with about the way I was feeling. I received my initial treatment at Mayo and was then sent to my home state to get treatment. Mayo saved my life, and I was treated so wonderfully, I wanted to share that experience with anyone it might help. When I was going through the treatment, I just put one foot in front of the other and made it through. It wasn’t until later that I realized what I had been through. It is also to talk with people that know exactly what you’ve been through. It’s a great network!

Thu, May 23 6:08am · Biting Nails in Just Want to Talk

Dear Lotsofpain,
I don’t know if you are male or female, but I’d suggest getting a gel nail manicure. It makes it difficult to bite your nails. This is only a suggestion if you are not immune compromised.