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Posts (121)

Jun 21, 2019 · Severe metal allergy to titanium, nickel need joint replacement in Joint Replacements

It is wonderful to see all the links to read about non-metal materials and stem cell therapy! I have always believed stem cell therapy to be so expensive? (at least on Medicare). My husband had a hip replaced over a year ago – he had a known allergy to nickel and after the replacement found out he also had an allergy to titanium!!! He is now on Dupixent, since Jan., and it is questionable whether or not that will prevent symtoms. Our allergist says she is trying to get the word out that there is a test for heavy metals that should be used when there is a question about allergies. You need to find out all you can before the replacement Knowing you already have a titanium allergy, to me, would be a red flag!!!!!!

May 24, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

@summertime4 Sometimes I think 99% of 'doctoring' is counseling. It's too bad when drs stand with their hand on the doorknob…

Feb 20, 2019 · Tens in Neuropathy

@peggyn – I have a little cheap tens unit that I got in Target, it is a great help for me when I have back/leg pain, however, not so sure it would help with atrophy. The other problem with that is it is for use in limited areas e.g. one for back/hip, one for shoulder. Manufactured by Icy Hot., not too expensive if you try it and it doesn't work.

Jan 28, 2019 · [Tip] Filter your Connect emails into a folder in Just Want to Talk

@colleenyoung – thank you for getting back so soon!!!! I did that once before and it helped, but lately I've been getting so many emails – don't know what caused the problem – maybe I've joined too many 'groups'? bb

Jan 23, 2019 · Restless Leg Syndrome in Sleep Health

@susan2018 – maybe I should try to omit the bedtime gabapentin… Agreed – sleeping a few hours straight makes a huge difference.

Jan 23, 2019 · Restless Leg Syndrome in Sleep Health

@lioness and @rensacb – thanks for your response – hope dr can help tomorrow. Times I need to drive husband 80 miles to dr and find I am too sleepy to do it! Either way – too much Mirapex or lack of good night's sleep from RLS – too sleepy to drive!!!

Jan 23, 2019 · Restless Leg Syndrome in Sleep Health

In late afternoon (about 5 pm) I take 1/2 a Mirapex 0.25, gabapentin 100 mg, hoping to avoid RLS when I sit down to watch TV after dinner. Mostly that works, but not always. The problem is — that Mirapex makes me so sleepy! Or maybe it's the combination of gabapentin and mirapex? Repeat that at bedtime, only increase the mirapex to 0.50 and I sleep so well! But that seems to carry over to next day – when I fall asleep any time of day!!! (Even after TWO Starbucks!!!!) Dr appt tomorrow – maybe I can switch back to Requip? Any other ideas?

Jan 12, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@johnbishop haha! remembering the one new thing is the problem!!!!