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Posts (155)

6 hours ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@windwalker …that is a horrific experience! I am gasping as I read it!! Sorry for your bad encounter with that stinker doc…and you are so right…the gut tells you what to do if you listen.

1 day ago · ClearLungs effective? in MAC & Bronchiectasis

@america ….hi Rita….yes i use it daily and think it is great. I was just responding to someone that I think was going to back off of it as she didn't want to suppress her cough. Was not sure that was correct. I was just letting her know that I thought Clear Lung thins the mucous and helps eliminate buildup. Thanks for your imput.

1 day ago · ClearLungs effective? in MAC & Bronchiectasis

@taya Hi. I think that your thought of action to "not suppress a cough" and "ease up on Clear Lung" are unrelated. Most certainly you should cough up any mucous that you have but I believe (and it is my belief), they do not go hand in hand. My understanding of Clear Lung is that it diminishes the mucous (which is good) and thins it so you can cough it out. Anyone else with thoughts on this???? Kate

1 day ago · I was recently diagnosed with Bronchiectasis. in MAC & Bronchiectasis

@mmteach Hello and welcome to our group! I agree with @lauralynn in checking with your Dr about lung clearance support. I was diagnosed with MAC and bronchiectasis last year. My Dr at Mayo seemed to think that my bronchiectasis could possibly date back to childhood. Both of my issues are mild so there is nothing to do but monitor them at this time. It sounds like you are at the initial point in diagnostics but also that you might have a mild case also with no symptoms. The things that my Dr wants me to do are to be sure my acid reflux is under control as it can aspirate into the lungs. (be sure that you do not have silent acid reflux and are not aware of it) Also to keep healthy (I keep a clean diet and do supplements to reinforce my immune system) I am to follow up yearly with an xray and sputum to stay on top of my situation and do airway clearance. (nebulize saline and usage of an acapella when I feel gunky) He suggests having an antibiotic on hand (one that is not one of the big 3) for any flare ups. And Excercise! So far, so good. Hope you stay healthy and your diagnosis does not present a problem for you. You sound like you have a concerned Doctor! Best wishes….Kate

1 day ago · I was recently diagnosed with Bronchiectasis. in MAC & Bronchiectasis

@kristiemlove …Thanks a million for your information on this alternative approach. I was very thankful to read your posting. Please keep us up to date on your mom's progress. Does she plan to continue her routine for a period of time? Your mom is a brave and determined pioneer!! Kudos to her and her free spirit. Big pharma would not appreciate her 20 cent approach…but I sure do! What does she feel about Brag's apple cider vinegar? A cleanser? Kate

1 day ago · I was recently diagnosed with Bronchiectasis. in MAC & Bronchiectasis

@kristiemlove … just short of miraculous!! I am so happy for your mom and for you! I am also thrilled to hear that about the colloidal silver. I have nebulized a couple of times after getting a cold this year to insure i dont get bronchitis or pneumonia. So far so good. I have been hesitant to use for any extended period of time but your info is comforting. I have always used it internally with huge success for infection. Glad to hear of your mom’s results and So very happy that she is doing so well. I am gobsmacked! Kate

4 days ago · Diagnosed with MAC but not being treated in MAC & Bronchiectasis

@deborahwolf I went to Mayo for a second opinion and got the same response. I think for now we can consider ourselves very fortunate. The first opinion from a local pulmonologist was basically the same but with no information or suggestions for improving my lung condition (nebulizing saline and lung clearance with an acapella device). I think it is always a good idea to get a second opinion, if for just the peace of mind. I was also told to Follow up yearly with an exray and sputum and to keep antibiotics on hand in case of a flare up (but not to use any of the big 3) Best wishes,