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Posts (270)

2 hours ago · Percussion Vests in MAC & Bronchiectasis

@windwalker …Thank you Terri!! When you say cleaning grade do you mean the white vinegar off the shelf at the grocery store?

2 days ago · Top MAC doctor/treatment Rochester: Questions to ask at first appt? in MAC & Bronchiectasis

Hi Nancy @n4seth Perfect info from Nan!! I just want to add about the acid reflux …do not eat or drink for 2, preferably 3 hours before bedtime…maybe only a sip of water. I totally agree with her dietary steps but take them a good deal further…another discussion.
Oh…and since you love to garden…you should probably wear a n95 mask (if they are ever available again) as MAC is in the earth as well as in the water. Be particularly careful if you feel you need to handle peat and newly potted plants. I used to live in the dirt but now limit my gardening to mostly pruning. Initially, it can be overwhelming but hopefully, it will fall into place and you will become much more comfortable. Questions? Just shout out!! Kate

2 days ago · Top MAC doctor/treatment Rochester: Questions to ask at first appt? in MAC & Bronchiectasis

@n4seth Welcome to our group. I cannot tell you how much I have learned here and how much it has eased my mind after my diagnosis of MAC. I do not see how you were diagnosed…Was it a bronchoscopy? What I would want to find out from your Dr would be …Do I have bronchiectasis? (Most of us do…it is a structural lung disease that often leaves one prone to infection). I would also try to address any causes that might have resulted in MAC …such as acid reflux, possible hot tub or swimming pool usage. If you are aspirating fluid into your lung at night because of acid reflux, you will need to get that under control. Do you need treatment at this point? Not all of us are on antibiotics and take a wait and see approach as the antibiotics can be difficult and not always provide the desired results or the MAC can return after the treatment was successful. It also seems that there can be a natural conversion without treatment. I personally would like to know more about that and how often that occurs. ?? There are lots of things that the folks on this site do to keep their lungs clean and as healthy as possible. YOu might ask if you should nebulize a saline solution….most find a 7% solution very effective in helping to remove sputum. You will need a script for that along with the nebulizing machine. There are also devices to help you to knock the sputum off the lung walls so you can cough it up….such as an aerobika, acapella or a vest? I guess the most important is finding how much your lungs have been compromised and if you are a candidate for antibiotics. There are different approaches to antibiotics…not one size fits all. There are also supplements that many take to help clear the lungs and many on this site find them very helpful. Most Dr.s do not seem to address this. I personally am approaching this disease with diet and supplements as well as many tips I have learned on this site. I am fortunate to have a mild case of bronchiectasis and MAC. We are all here to try to help one another through this. This is a crummy time to find you have a lung issue with the current climate of Covid19 but try not to stress too much till you get to your appointment and get a handle on your situation. I think I probably went along having this disease for years without a diagnosis. I am actually really happy to be diagnosed as now I am able to take healthful steps for my lungs. I wish you good luck and good health going forward. Kate

2 days ago · Percussion Vests in MAC & Bronchiectasis

@toni1132 I've been thinking more about the water pik and killing the MAC. Perhaps running saltwater through at the end and allowing it to sit in the plastic tubing would kill any potential MAC.?? I am attaching research that indicates that MAC cannot live in a saline solution of 7% or greater. (check the chart) I think I will start doing this. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692/ I was never sure if colloidal silver would kill it but feel good about the saltwater.

2 days ago · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@windwalker …It opens up the heart…And I agree, unifying and uplifting! Haha…crushing on RingO!

6 days ago · Percussion Vests in MAC & Bronchiectasis

Toni…I am just not sure what would be the better MAC killer but the hydrogen peroxide also sounds like a good bet. You stay safe too! Kate

Tue, Mar 31 1:33pm · Percussion Vests in MAC & Bronchiectasis

@toni1132 hi Toni. My sister has a waterpik and she had ordered an extra tubing with an additional flosser head from waterpik. I have one also that i put a dropper full of colloidal silver in the water near the end of my session to kill any bacteria . That tubing never dries out so water just sits in it. Just a thought. Kate

Mon, Mar 30 10:21am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@irene5 Hi Irene…I had seen Dr Jeff's video also on handling groceries. I'm posting the link here so all can watch.

Stay safe everyone!! Kate