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1 day ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@garry Most definitely steer clear of hot tubs and steam rooms. It is also advised to not use swimming pools and use caution with showerheads. I stopped taking showers and use the tub…If I am dying for a shower….I have cheap Lowes showerheads and throw them out usually after a few uses. Some on this site soak their shower heads in vinegar. Also, the refrigerator ice and water bar should be shunned. If you scroll back through this Mayo site you will pick up some very good tips on how to limit your exposure to MAC. I have it in my body…..and do not want to add more to my collection. Best, Kate

3 days ago · 7% Saline Solution in MAC & Bronchiectasis

@windwalker.. you are my go to source for so many things including nebulizing. I would not have known if not for you and this site. I have a lot to be grateful for. 🙏 Thank you!! Kate

5 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@toni1132 ..Hi Toni…Yes, I still use a waterpik and question it's use all the time but feel I need it as I have had extensive gum surgery. I add some colloidal silver to the water towards the end of the session every so often and hope that takes care of the bacteria….but that is only my best guess how to deal with accumulating bacteria in the lines. I do know you can order new tubing if you contact the manufacturer. Kate

5 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@anniepie….good luck to you tomorrow with your testing…and let us know. So Sorry. Kate

6 days ago · 7% Saline Solution in MAC & Bronchiectasis

@suenfl.. Hi Sue…Perhaps you need to go for a second opinion? Sounds as though your Doc is not terribly concerned with your thoughts about your body and your treatment. Also sounds as though he may not be up or current on treatment for MAC. Do you live near a Mayo Clinic? My local pulmo said no to saline (no added moisture was his response) yet everything I read about saline made sense so I got my GP to script it….. Then I went to Mayo for a second opinion….The Mayo Dr said yes to nebulizing and gave me so much direction that my local Pulmo never even mentioned. I can't tell you how happy I was that I went for that opinion from someone that I trusted and felt was a specialist to the disease. I hope you get some peace of mind about the direction of your treatment. Good luck. Kate

Mon, Jan 6 7:12pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert …Thanks for the heads up on the iron. I will be asking for iron bloodwork next I visit my GP, since I am vegan too I did see this (not sure where) and thought it important.
"Iron is a double-edged sword. If we don’t absorb enough, we risk anemia; but if absorb too much, we may increase our risk of cancer, heart disease, and a number of inflammatory conditions. Because the human body has no mechanism to rid itself of excess iron, one should choose plant-based (non-heme) sources, over which our body has some control." 
Kate

Dec 31, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america…I hope your surgery and recuperation goes well! Best wishes for a healthy New Year!