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Posts (6)

Mar 16, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Hey thanks, i am not sure what small fiber neuropathy is, but i will look into it.  Certainly it shares many problems i am expdriencing. Glad to hear you are staying active, as i hope to be doing for a long time.  Thx too for the referral to  the foundationforPN. Bucky

Mar 16, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Thanks venki, i will put this on my question list for my next checkin with my doctor. Bucky

Mar 16, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Thanks steeldove, this is very helpful as i learn about options and alternatives and the future. Bucky

Mar 16, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Thanks, good to learn there a folks working on these issues.

Mar 16, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Hey Thanks John, This is exactly what i learn about – options for supplementing/ maintaining my abilities.  Have a good one. Bucky

Mar 12, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

Hello. I am suffering from a type of peripheral neuropathy that has significantly reduced my ability to walk/balance. It has resulted in relatively recent (3- 5 years) and rapid muscle atrophy and my decline is becoming more rapid. My doctor has not been able to identify a cause. I am interested in support options to stay as active as possible (and hopefully outdoors as much as possible) over time. I have been active and outdoors all my life, biking, kayaking, camping, running, skiing, etc. So I am looking for information on increasing/maintain by current functionality/mobility, groups that provide outdoor activities for disabled folks, etc. Due to the speed of my decline, I also would like information on what progression of mobility/ function of life support I might expect – i.e. cane, special sports opportunities (i.e people missing a leg skiing), transitioning to life in a wheelchair, etc. Thanks, WobblyOne