Thanks, JK, plus the hospital trying to milk me for all I got. This is Beaufort, SC, and they have always been notorious for doing this evil.
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I have never heard of this disease, if it's considered a disease. A friend of mine had the same symptoms as your Mom, and I think she developed diabetes. I have Type 1 diabetes and barely leave the house for fear I will have a diabetic low. I've come close to death. My body does not tell me I'm having a deadly low. I get tired, sleepy and BAMN, I'm gone. Many people are treated as drunks, thrown in jail and died. The police should be schooled in diabetes. I got caught weaving and bumping the curb. I was wearing my Dexcom and with my diabetic necklace, but they still performed an ethanol test on me.I refuse to pay for all the blood work the ER performed when all I needed was glucose. Just a way for the hospital to pad their wallet.I wear a Dexcom meter and that helps, but low blood sugar will take you out. I've had close calls. I can't tell you how many times my husband has called EMS to revive me. I hate Type 1 diabetes.
I've had life-long silent Celiac Disease and didn't know it. Bloated stomach and Brain Fog. Internal shakiness and fatigue. Then I was diagnosed with Microscopic Colitis, (MC). Okay! Then I was diagnosed with BOOP Pneumonia. It's Idiopathic or doctors don't know what causes BOOP. My lungs were filled with inflammation. The doctor did an X-ray and biopsy of my lungs and I witnessed my lungs were pure White, INFLAMMATION!!! I found out that Gut and Lung tissue are similar or the same. You can die from BOOP PNEUMONIA. I was lucky! I survived BOOP. I was prescribed Prednisone long term. HORRORS! I did research and ordered the book – "BOOP: You're The Boss". You can cure BOOP with Macrolides – clarithromycin and azithromycin, and bypass the deadly steroids. I informed my pulmonogist and that's what he uses now. I think life-long silent Celiac Disease and Microscopic Colitis caused BOOP PNEUMONIA. I know MC is an autoimmune disorder where your gut is inflamed and irritated. The inflammation has to go somewhere, so it goes to the lungs. That's my humble opinion and two cents worth. Don't play around with BOOP PNEUMONIA!
Since I'm a RN, I like to help people. Hope things work out for you. Give it time, and look on the MC (Wayne Perskey's) website. It has loads of information with people suffering like you and me.Everybody talks about their trial and tribulations with this disease.
Asta, I'm use to my restricted diet. I eat a Caveman's diet and doing much better. Lots of protein for healing your gut, well-cooked soft vegetables, and fruit. It's a trial and error approach. If you get desperate like me, you can always contact Dr. Fine, Enterolab to find out what you can and can't eat. No 72 hour fecal exam, just a small stool sample you mail to him. It's worth the money and maybe you can get off your destructive drugs. Many with MC have stated the drugs DON'T HELP!