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Tue, Jan 21 12:43pm · 7% Saline Solution in MAC & Bronchiectasis

I agree! I nebulize Duoneb and Budesonide. After that I add the saline. The saline was added to my regimen last year. It has made a huge difference for me. Good to hear it’s helping you too. 🙂

Dec 9, 2019 · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

Thank you cinnamon215. 🙂 It can be a battle at times keeping the Lichen Sclerosis under control. I actually have a long list of autoimmune and other disorders. Best wishes to you as well. 🙂

Dec 9, 2019 · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

I was diagnosed with Lichen Sclerosis by biopsy about 15 yrs ago. I have used Clobetasol for several years. I use it twice a week for maintenance. If I have a bad flare I use it daily until things start settling down. I used Flucininoide steroid ointment in the past but it doesn’t work well enough for me. I’m currently having one of the worst flares I’ve ever had. It is affecting my Urethra and causing moderate pain. I thought it was a bladder infection so went to the doctor last week but urine test was negative. I have been mixing Clobetasal with 5% Lidocaine cream and applying it. I will be going to the doctor this week to see if there is anything else I can

Nov 3, 2019 · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

Oh and also, the first month I was on the Clarithomycin, Ethambutal, and Rifampin, I was pretty sick from the side effects. My Infectious Disease doctor told me it takes about four weeks for your body to adjust to being on the medication and then the side effects are milder. In my case that was true but I know it’s different for everyone.

Nov 3, 2019 · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

I was on Clarithomycin instead of Azithromycin. The Azithromycin made me too sick – stomach wise. I do t know if the Clarithomycin causes tinnitus or not though. I had tinnitus before ever starting the meds.

Nov 2, 2019 · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

Not everyone has the side effects. 🙂

Sep 24, 2019 · Whole-House Air Purifier Systems in Lung Health

We have a Honeywell electronic air cleaner system with UV light. It does produce a wee bit of ionize but has never caused me any problem. I have 1 and 1/3 lungs due to lung cancer in 2015. I was treated three years for MAC. I also have Bronchiectasis, Emphysema, Asthma, and allergies. The air cleaner has been a godsend.

Jul 11, 2019 · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

Sorry to hear you have been dealing with this for so many years. I’ve been lucky that the Clobetasol ointment usually keeps mine from getting too bad. I do have a lot of scar tissue though. Take Care. 🙂