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Mon, Mar 30 12:52pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

I stay home except for going to the infusion clinic every other day. I am on a 48 hr pump with Cefepime dosing 3 x day for Pseudomonas flare. Was on two weeks 2 x day and three weeks later the heavy growth was back. Argh. When I leave clinic I wash my hands off with alcohol wipes. I’m allergic to hand sanitizers.
My husband does the grocery shopping. Then we wipe all groceries down with antibacterial wipes. Fruit and veggies we wash. When my husband comes done from store or work he wipes down door handles and washes his hands. I finally convinced him he needs to change clothes as well.
Stay safe everyone! 😃

Mon, Mar 16 5:13am · Need to order medical book on MAC TB treatment and side effects in MAC & Bronchiectasis

Colleen – If you look at the persons posts from a year ago, it is evident not a doctor. Just putting my two cents in.

Wed, Mar 11 8:38pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

Oh darn! Sorry you have to miss out on your trip. Better safe than sorry though.

Wed, Mar 4 3:49am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

I’m staying home. I am retired so easy to do. I know not everyone is. I suggest sticking up on non perishable foods, juice, water, toilet paper, paper towels, Since we don’t know how serious Covid-19 will become in every area, it’s good to be prepared. Sanitizing wipes are good to have but I know they are selling out fast. Soap and water works well and so do things like Mr. Clean liquid cleaner, bleach, and such. I was just in Washington, D.C. and All face masks were sold out. I had to go to Kaiser Permanente to get one for my flight back to Oregon.

Tue, Jan 21 12:43pm · 7% Saline Solution in MAC & Bronchiectasis

I agree! I nebulize Duoneb and Budesonide. After that I add the saline. The saline was added to my regimen last year. It has made a huge difference for me. Good to hear it’s helping you too. 🙂

Dec 9, 2019 · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

Thank you cinnamon215. 🙂 It can be a battle at times keeping the Lichen Sclerosis under control. I actually have a long list of autoimmune and other disorders. Best wishes to you as well. 🙂

Dec 9, 2019 · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

I was diagnosed with Lichen Sclerosis by biopsy about 15 yrs ago. I have used Clobetasol for several years. I use it twice a week for maintenance. If I have a bad flare I use it daily until things start settling down. I used Flucininoide steroid ointment in the past but it doesn’t work well enough for me. I’m currently having one of the worst flares I’ve ever had. It is affecting my Urethra and causing moderate pain. I thought it was a bladder infection so went to the doctor last week but urine test was negative. I have been mixing Clobetasal with 5% Lidocaine cream and applying it. I will be going to the doctor this week to see if there is anything else I can

Nov 3, 2019 · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

Oh and also, the first month I was on the Clarithomycin, Ethambutal, and Rifampin, I was pretty sick from the side effects. My Infectious Disease doctor told me it takes about four weeks for your body to adjust to being on the medication and then the side effects are milder. In my case that was true but I know it’s different for everyone.