I agree! I nebulize Duoneb and Budesonide. After that I add the saline. The saline was added to my regimen last year. It has made a huge difference for me. Good to hear it’s helping you too. 🙂
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I was diagnosed with Lichen Sclerosis by biopsy about 15 yrs ago. I have used Clobetasol for several years. I use it twice a week for maintenance. If I have a bad flare I use it daily until things start settling down. I used Flucininoide steroid ointment in the past but it doesn’t work well enough for me. I’m currently having one of the worst flares I’ve ever had. It is affecting my Urethra and causing moderate pain. I thought it was a bladder infection so went to the doctor last week but urine test was negative. I have been mixing Clobetasal with 5% Lidocaine cream and applying it. I will be going to the doctor this week to see if there is anything else I can
Oh and also, the first month I was on the Clarithomycin, Ethambutal, and Rifampin, I was pretty sick from the side effects. My Infectious Disease doctor told me it takes about four weeks for your body to adjust to being on the medication and then the side effects are milder. In my case that was true but I know it’s different for everyone.
We have a Honeywell electronic air cleaner system with UV light. It does produce a wee bit of ionize but has never caused me any problem. I have 1 and 1/3 lungs due to lung cancer in 2015. I was treated three years for MAC. I also have Bronchiectasis, Emphysema, Asthma, and allergies. The air cleaner has been a godsend.