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Posts (175)

Tue, Apr 9 7:20am · Cellcept and Tacrolimus Co-administration in Transplants

@rosemarya @webiondev
I had an issue with a blocked bile duct. I underwent 3 ERCP stenting procedures. The first 2 were unsuccessful and I contracted pancreatitus twice. They ended up inserting an external drain linked to the bile duct. The third attempt was successful and I have a temporary plastic stent. This will be replaced with a metal stent early June.

Tue, Apr 9 7:09am · Cellcept and Tacrolimus Co-administration in Transplants

@webiondev I take tacrolimus and cellcept at the dame time.

Mon, Apr 1 3:58pm · This and That and Talk - My Transplant in Transplants

I often wonder about rejection as well. I suppose for me it will always be a cause for concern. I am only 4 months post transplant.

Mon, Apr 1 3:55pm · This and That and Talk - My Transplant in Transplants

@rosemarya . Hello Rosemary. Just a quick update on my last ERCP to place stent in my bile duct. They managed to insert a plastic stent without causing any pancreatitis this time. 3rd time lucky? They are going to replace it the 3rd of June with a metal stent. Hopefully this will go smoothly. I still have no feeling when touching my stomach and I can feel all sorts of scar tissue below the skin both sides of my scar and into my right side. My appetite is still off and it hurts if I eat more than a few bites at a time. We are now 4 months post transplant. My energy has not returned yet and I still get dizzy walking or moving about. Just taking one day at a time for now. 💓

Wed, Mar 27 11:06am · Liver transplant support group in Transplants

@calikellyw hello and welcome. I am a new transplant recipient (Nov 28 2018).
I felt I was stuck in the MELD purgatory at one point myself. My MELD was 30 for a long time. I did get my liver at 17 months on the wait list. If you don't mind me asking what is your current MELD score?
You will find this group informative and very supportive. Sharing their experiences helped me through many difficult times. I wish you a speedy journey.

Mon, Mar 18 2:00pm · Liver disease itching in Transplants

@contentandwell thank you so much for your help. I will definitely ask my transplant team as well.

Mon, Mar 18 1:57pm · Liver disease itching in Transplants

@caro72 I met quite a few people from the North Bay area here in London at the transplant clinic at University Hospital. I hope you get the answers you are looking for.

Mon, Mar 18 12:18pm · Liver disease itching in Transplants

@rosemarya Hello. It is cool here but the crocus are poking through.
I am starting to eat more solids without pain. Tastebuds are still way out of whack and certain food textures (like bread) are still compromised. I am moving April 1st so I've been pàcking boxes to keep busy.
I do have a question though. What are your thoughts on swimming in public/private pools, oceans and lakes? I'm concerned about bacteria in the water.