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Posts (178)

Sun, Apr 28 4:22pm · Post Transplant Symptoms in Transplants

@gary1864 … I too suffer from this type of fatigue. My arms and legs are like lead and my joints in my hands, ankles and knees ache. I was just told that my white blood cell count is very low. I received my liver Nov 2018. They think it may be the cellcept (immunosupressant) that may be the cause. I was taking 1000mg daily and now I take none. I'm hoping this may clear my tired body. If not back to more tests.

Sat, Apr 27 9:43pm · It's not all about the MELD Score in Transplants

@contentandwell my blood type is O+ and I'm about 5'2". Yes, things went pretty south from about 29 and up. That was about last fall. They transplanted me fairly quickly afyer that. I believe I was about 33. I'm just having (more) problems now. My white blood cell count has plummeted and they've taken me off cellcept. I was on 1000 mg a day. Now I take 2mg tacrolimus and 5mg prednisone (amongst 12 other pills) daily. Fingers crossed 🤞🤞

Sat, Apr 27 9:08pm · It's not all about the MELD Score in Transplants

My original MELD score was 25 and it only went up from there. When I finally reached 30+ they deemed me ill enough to top the transplant wait list. It took 17 months on the wait list to be transplanted. My blood type and small physique held me back. I was diagnosed with cirrhosis and the scarring was irreversable. I'm not sure if they'd transplant you with such a low score but they do take each case individually.

Tue, Apr 9 7:20am · Cellcept and Tacrolimus Co-administration in Transplants

@rosemarya @webiondev
I had an issue with a blocked bile duct. I underwent 3 ERCP stenting procedures. The first 2 were unsuccessful and I contracted pancreatitus twice. They ended up inserting an external drain linked to the bile duct. The third attempt was successful and I have a temporary plastic stent. This will be replaced with a metal stent early June.

Tue, Apr 9 7:09am · Cellcept and Tacrolimus Co-administration in Transplants

@webiondev I take tacrolimus and cellcept at the dame time.

Mon, Apr 1 3:58pm · This and That and Talk - My Transplant in Transplants

I often wonder about rejection as well. I suppose for me it will always be a cause for concern. I am only 4 months post transplant.

Mon, Apr 1 3:55pm · This and That and Talk - My Transplant in Transplants

@rosemarya . Hello Rosemary. Just a quick update on my last ERCP to place stent in my bile duct. They managed to insert a plastic stent without causing any pancreatitis this time. 3rd time lucky? They are going to replace it the 3rd of June with a metal stent. Hopefully this will go smoothly. I still have no feeling when touching my stomach and I can feel all sorts of scar tissue below the skin both sides of my scar and into my right side. My appetite is still off and it hurts if I eat more than a few bites at a time. We are now 4 months post transplant. My energy has not returned yet and I still get dizzy walking or moving about. Just taking one day at a time for now. 💓

Wed, Mar 27 11:06am · Liver transplant support group in Transplants

@calikellyw hello and welcome. I am a new transplant recipient (Nov 28 2018).
I felt I was stuck in the MELD purgatory at one point myself. My MELD was 30 for a long time. I did get my liver at 17 months on the wait list. If you don't mind me asking what is your current MELD score?
You will find this group informative and very supportive. Sharing their experiences helped me through many difficult times. I wish you a speedy journey.