Badges (1)

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (4)

Mar 9, 2018 · Autoimmune Diseases and Fatigue in Autoimmune Diseases

John thank you! I am glad I found this forum. Seems to be some very friendly and helpful people here. I was expecting a response days later. However I am sure this site is a wonderful and helpful place to visit.

Thank you for the information. I came across Ted Talk not to long ago and really liked the channel. However I did not come across CFS talk. Will definitely look that up as well as the other information you posted.

Thanks for your help!

Billy

Mar 9, 2018 · Autoimmune Diseases and Fatigue in Autoimmune Diseases

Kyjeanne, that is what I have been looking into and reading about. I have not heard of that particular diet but will absolutely look into it. The medication didn't work for me and I won't take the risks with any other med. When you have an illness like this, you have to keep looking for a way out! Thanks for the great information! I am super glad it is working for you!

Billy

Mar 9, 2018 · Autoimmune Diseases and Fatigue in Autoimmune Diseases

Thank you Robbin for responding. I have only had Sjorgren's for a short time here and it's already wrecked my life. I can't imagine having Fibro for 20+ years. When I hear that someone has suffered that long, makes me feel sad. I'm sorry any of us has to go through this.

Thanks again Robbin, Thanks for responding!

Billy

Mar 8, 2018 · Autoimmune Diseases and Fatigue in Autoimmune Diseases

I was diagnosed with Sjogren's but I also suffer from depression and anxiety/panic attacks. I suffered from depression and anxiety most of my life (47 now) and I have never experienced Fatigue like this, EVER!!! I was diagnosed with Sjogren's in 2016 and that is when the fatigue hit. So I would say Sjogren's has something to do with it one way or another. Of course the depression and anxiety are at it's highest level, so I would say Sjogren's play's apart in that also. Just my opinion, having experienced chronic depression and anxiety and not having to deal with fatigue like this. Maybe it is different for everyone. I know it Sjogren's affect people differently.

I don't have a support system and like some people have posted, people really don't understand! fatigue has stole my life. I lost everything!! What I would like to know from others, is this. Does fatigue get so bad it feels like your body is going to shut down and you will die?? I don't feel that way all the time, but it gets pretty severe way to often. It scares me really. I don't really take anything at the moment because the medication they gave me did not sit well with me. Increased insomnia like never before. Couldn't sleep a wink for 4 days and thought I was going to go insane.. literally!! I did drop the dose but no change. My brain just wouldn't shut down. I did do some research on fatigue this whole time and I recently came across modafinil and I am so curious to try this. I can't handle this life with fatigue and I am desperate, as we all are!! Life sure is unfair!!

Anyhow I feel for anyone going through any illness and specifically Sjogren's because I can relate so well. I do hope we find our lives back and wish you all well…

Bill

Medication was plaquenil.