Yes, that’s correct. Transmural mean the patient journey (together wit their directly involved loved-ones) from ICU to home. From intramural to extramural healthcare.
There is no such care pathway at all at the moment for all who have to deal with PICS, including PICS-F.
We at the Patient and Family Centered Intensive Care foundation (www.fcic.nl) see the surviving patient and their loved-ones directly involved in this process as one healing unit. They do this together. That’s why we founded IC connect (www.icconnect.nl) to offer guidance for them. We recently received the official support from the Dutch ministry of Health for our initiative.
We do want Intensive care (in fact healthcare in general) to develop a person centered holistic view of the future which optimizes the impact of ICU stay. Innovation of care with a continuum of care resulting in quality of life for patient and their family and friends.
We are in the process to help contribute to change of the system. We believe it is an important key to make this happen by connecting researcher, professionals and patients/relatives together all the time in this process. They are also participating in our FCIC foundation.
Post ICU care is a Global problem. It would be great to learn from each other as organizations involved. To curate the knowledge there already is. It’s a lifelong learning process.
There are already nice initiatives and would suggest to create a Global network in order to join forces and speed up the process. This care path is needed, but you are of course already aware of this.
Are you aware of such a network already existing? What do you think, in case such synergy is not available yet, would it be a good step forward to develop a Global initiative like this?