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Wed, Sep 4 10:28am · What's the difference between lung cancer and mesothelioma? in Lung Cancer

The best sourse of mesothelioma information for patients, caregivers and bereaved is the Mesothelioma Applied Research Foundation. Websites like Asbestos.com are connected with law firms. The Meso Foundation is the only 501c3 non-profit that focuses on prevention, treatments, cures and public outreach advocacy regarding asbestos and the diseases it causes.

Thu, Aug 8 8:31am · Diagnosed with Meningioma in Brain Tumor

I should add that her post-surgery protocol was about a week in the hospital, then transfer to a rehab facility for PT/OT for several weeks to make sure she was able to get around and be steady on her feel while doing it. She is now back living at home and traveling, so all appears to be going the right direction.

Thu, Aug 8 8:28am · Diagnosed with Meningioma in Brain Tumor

My step mom, age 81, who lives in central Kentucky, just had a frontal lobe meningioma removed at the University of Kentucky, although she is a Mayo RST patient and initially underwent gamma knife radiation there to supress its growth. That part was a success, but the resulting edema, and the need for steroids to control it, caused far more issues for her. So after a year post gamma knife and intolerable side effects from the edema, all on her care team agreed that the removal was really the best option. She is about 6 weeks post-op and seems to be doing very well. Tapering off of the steroids and getting her blood sugars back to normal. The edema/steroids were really scary – it effected her balance and her leg strength and thinking and she took many falls and hits to her head. We are lucky that the falling alone did not seriously injure her. It's my understanding that edema side effects are considered rare. Anyone else have any similar issues after gamma knife?

Sun, Jul 28 8:33am · Swelling following gamma knife procedure for meninigioma in Brain Tumor

Hello! Well, after almost a year of trying to manage the edema caused by the gamma knife procedure, and all of the serious side effects from them (dizziness, inability to function on many levels due to edema, predniosne and the effects from the steroids as well), my step-mom finally agreed to have the meningioma removed a few weeks ago at the University of Kentucky (near where she lives) and she is doing very well! She was in the hospital about a week, then transferred to a rehab facility for therapy for several weeks but is now back home and according to my Dad, just about back to normal for her at age 82. So all is good. Surgery was not desired over the years because, well, it's surgery and we all like to try to avoid that, but in her case, the complications from the gamma knife, which I understand are not common, were very bothersome for her. And the steroids added to that misery as she had great difficulty tapering off as the edema issues would always come back if the dosage was too low, yet the steroids were problematic in their own right. I'll be seeing her in a couple of weeks when they vacation in Iowa. Thanks for asking!

Sun, Mar 24 9:36pm · Does anyone know or have a INTRATHECAL PAIN PUMP? in Chronic Pain

We were told that the pump could deliver more effective medicine in much, much smaller amounts than oral opioids for the same amount of pain relief, with far fewer side effects. For my husband, it was a very bad choice, with no meaningful pain relief benefit and side effects worse than before the surgery. Thank you for your kind words. I am sure pumps help many people, but sadly my husband was not one of them.

Mon, Mar 18 9:52pm · Does anyone know or have a INTRATHECAL PAIN PUMP? in Chronic Pain

My husband had a Medtronic pump implanted at Mayo in 2016 for late-stage cancer pain involving pathologically fractured ribs. The medicine they chose for him was morphine. The surgery was terribly hard on him and was to be a simple outpatient procedure, but he spent 4 days in the hospital, unable to recover from the general anesthesia. The morphine gave him little if any relief and finding a practitioner outside of the Mayo network to manage the dosage was nearly impossible. His health declined rapidly after the surgery and he lived for less than two months after that. I deeply regret putting him through that and have nothing positive to say about his experience with the pump. I hope others are having better results. The concept is good, though, but it's not for everyone.

Fri, Mar 15 7:09pm · Left Anterior Clinoid Meningioma Surgery in Brain Tumor

Hi… a family member had a meningioma treated at Mayo Rochester last August with the gamma knife. The procedure was a success, but she experienced significant post-procedure swelling about 4 months later and ended up having to go to the emergency room with a multitude of neurological symptoms. The steroids she had tapered off of were needed to be added back to control the swelling. She has had several more bouts of neuro symptoms each time the steroid was reduced. She is just coming back out of the hospital and rehab again on a new maintenance steroid plan. Her tumor was small enough to be a good gamma knife candidate. Not sure what the long-term plan will be. Hoping to find just the right dosing of steroids to control the swelling with out any significant side effects. She is a very young 81 years old.

Tue, Jan 8 6:23pm · Swelling following gamma knife procedure for meninigioma in Brain Tumor

A family member had gamma knife radiation at Mayo for a brain meningioma in August and recently had neuro episodes suspected to be post procedure swelling 5 months post procedure. Final tests and evaluations pending at Mayo. Anyone out there have experience with this?