About

Member has chosen to not make this information public.

Pages (1)

Posts (23)

Wed, Jan 8 10:07am · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

My husband also had an intrathecal pain medicine delivery pump implanted, with morphine as the medicine of choice. That also failed to give him relief from his cancer pain. We were told how helpful it would be, with lower side effects from less medicine and maximum benefit. Nothing worked. The surgery to implant the pump left him even worse off and he never really recovered from what was an outpatient procedure. His last two months following the pain pump surgery were not worth living. It was as bad of an outcome as could have been scripted. I am deeply regretful of the entire experience, and we went to two of the country's top experts in his form of cancer.

Mon, Jan 6 6:04pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

I'm not sure I understand what "nerve pain" is. ALL pain is rooted in the nerves that serve a particular part of the body.

Mon, Jan 6 1:28pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

My husband was on Gabapentin and Lyrica for chronic and significant pain from cancer. Neither one worked, and as I understand how this works for pain, you must titrate up the dose and over time is when you can expect benefit. It is not for acute pain. His was both, and these products did nothing beneficial for him, and probably made him feel worse. I was very disappointed in these drug choices for this type of pain. That said, some folks DO get benefit. There is nothing that works well or the same for every patient. But trial and error can be harmful when trying to find relief from pain.

Dec 18, 2019 · Chest Pain for 1 month in Heart & Blood Health

That is curious, for sure. Do you have any updates? Could you have a broken rib or an issue with your pleural space? I am asking because what you describe are similar symptoms to what my husband experienced with pleural mesothelioma. Or perhaps the pain is referred from another part of your chest or spine? Please let us know what you find out.

Sep 4, 2019 · What's the difference between lung cancer and mesothelioma? in Lung Cancer

The best sourse of mesothelioma information for patients, caregivers and bereaved is the Mesothelioma Applied Research Foundation. Websites like Asbestos.com are connected with law firms. The Meso Foundation is the only 501c3 non-profit that focuses on prevention, treatments, cures and public outreach advocacy regarding asbestos and the diseases it causes.

Aug 8, 2019 · Diagnosed with Meningioma in Brain Tumor

I should add that her post-surgery protocol was about a week in the hospital, then transfer to a rehab facility for PT/OT for several weeks to make sure she was able to get around and be steady on her feel while doing it. She is now back living at home and traveling, so all appears to be going the right direction.

Aug 8, 2019 · Diagnosed with Meningioma in Brain Tumor

My step mom, age 81, who lives in central Kentucky, just had a frontal lobe meningioma removed at the University of Kentucky, although she is a Mayo RST patient and initially underwent gamma knife radiation there to supress its growth. That part was a success, but the resulting edema, and the need for steroids to control it, caused far more issues for her. So after a year post gamma knife and intolerable side effects from the edema, all on her care team agreed that the removal was really the best option. She is about 6 weeks post-op and seems to be doing very well. Tapering off of the steroids and getting her blood sugars back to normal. The edema/steroids were really scary – it effected her balance and her leg strength and thinking and she took many falls and hits to her head. We are lucky that the falling alone did not seriously injure her. It's my understanding that edema side effects are considered rare. Anyone else have any similar issues after gamma knife?

Jul 28, 2019 · Swelling following gamma knife procedure for meninigioma in Brain Tumor

Hello! Well, after almost a year of trying to manage the edema caused by the gamma knife procedure, and all of the serious side effects from them (dizziness, inability to function on many levels due to edema, predniosne and the effects from the steroids as well), my step-mom finally agreed to have the meningioma removed a few weeks ago at the University of Kentucky (near where she lives) and she is doing very well! She was in the hospital about a week, then transferred to a rehab facility for therapy for several weeks but is now back home and according to my Dad, just about back to normal for her at age 82. So all is good. Surgery was not desired over the years because, well, it's surgery and we all like to try to avoid that, but in her case, the complications from the gamma knife, which I understand are not common, were very bothersome for her. And the steroids added to that misery as she had great difficulty tapering off as the edema issues would always come back if the dosage was too low, yet the steroids were problematic in their own right. I'll be seeing her in a couple of weeks when they vacation in Iowa. Thanks for asking!