Member has chosen to not make this information public.

Pages (1)

Posts (24)

Tue, Jan 28 3:38pm · gabapentin causing muscle pain and cramps in Chronic Pain

My husband was on Gabapentin and Lyrica both for chronic and acute pain both due to pathologic rib fractures caused by malignant pleural mesothelioma. He was also on several other medications so it was always hard to pinpoint which medication was causing problematic symptoms. But he did struggle with weakness, coordination issues, foggy thinking and a whole host of terrible side effects during the course of his treatment. If I could redo the last year of his life I would have opted for NO drugs that cause any known side effects but rather treat his symptoms as naturally and healthy as possible. I believe 110 % that the traditional treatments lead to his early and painful death and made the last months of his life not worth living. Very disappointed in western medicine right now.

Wed, Jan 8 10:07am · Side effects and benefits of Gabapentin in Chronic Pain

My husband also had an intrathecal pain medicine delivery pump implanted, with morphine as the medicine of choice. That also failed to give him relief from his cancer pain. We were told how helpful it would be, with lower side effects from less medicine and maximum benefit. Nothing worked. The surgery to implant the pump left him even worse off and he never really recovered from what was an outpatient procedure. His last two months following the pain pump surgery were not worth living. It was as bad of an outcome as could have been scripted. I am deeply regretful of the entire experience, and we went to two of the country's top experts in his form of cancer.

Mon, Jan 6 6:04pm · Side effects and benefits of Gabapentin in Chronic Pain

I'm not sure I understand what "nerve pain" is. ALL pain is rooted in the nerves that serve a particular part of the body.

Mon, Jan 6 1:28pm · Side effects and benefits of Gabapentin in Chronic Pain

My husband was on Gabapentin and Lyrica for chronic and significant pain from cancer. Neither one worked, and as I understand how this works for pain, you must titrate up the dose and over time is when you can expect benefit. It is not for acute pain. His was both, and these products did nothing beneficial for him, and probably made him feel worse. I was very disappointed in these drug choices for this type of pain. That said, some folks DO get benefit. There is nothing that works well or the same for every patient. But trial and error can be harmful when trying to find relief from pain.

Dec 18, 2019 · Chest Pain for 1 month in Heart & Blood Health

That is curious, for sure. Do you have any updates? Could you have a broken rib or an issue with your pleural space? I am asking because what you describe are similar symptoms to what my husband experienced with pleural mesothelioma. Or perhaps the pain is referred from another part of your chest or spine? Please let us know what you find out.

Sep 4, 2019 · What's the difference between lung cancer and mesothelioma? in Lung Cancer

The best sourse of mesothelioma information for patients, caregivers and bereaved is the Mesothelioma Applied Research Foundation. Websites like Asbestos.com are connected with law firms. The Meso Foundation is the only 501c3 non-profit that focuses on prevention, treatments, cures and public outreach advocacy regarding asbestos and the diseases it causes.

Aug 8, 2019 · Diagnosed with Meningioma in Brain Tumor

I should add that her post-surgery protocol was about a week in the hospital, then transfer to a rehab facility for PT/OT for several weeks to make sure she was able to get around and be steady on her feel while doing it. She is now back living at home and traveling, so all appears to be going the right direction.

Aug 8, 2019 · Diagnosed with Meningioma in Brain Tumor

My step mom, age 81, who lives in central Kentucky, just had a frontal lobe meningioma removed at the University of Kentucky, although she is a Mayo RST patient and initially underwent gamma knife radiation there to supress its growth. That part was a success, but the resulting edema, and the need for steroids to control it, caused far more issues for her. So after a year post gamma knife and intolerable side effects from the edema, all on her care team agreed that the removal was really the best option. She is about 6 weeks post-op and seems to be doing very well. Tapering off of the steroids and getting her blood sugars back to normal. The edema/steroids were really scary – it effected her balance and her leg strength and thinking and she took many falls and hits to her head. We are lucky that the falling alone did not seriously injure her. It's my understanding that edema side effects are considered rare. Anyone else have any similar issues after gamma knife?