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Posts (4)

Feb 26, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@donnamarie has your doctors ever tested your immunoglobulin levels especially if you are getting bacteria and pneumonia infections?

Feb 26, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@vinceernst your case sounds similar to mine as well as @jonnybear619 's. Sounds like you are getting bacteria in if you're getting one pneumonia. I too have had walking pneumonia twice as an adult and countless infections (doctors only recently started testing my sputum to see if the infections are bacteria). I replied to @jonnybear619 on this thread as he says he's getting pleghm after physical activity. Same for me and I was also getting infections after social drinking with friends on weekends. I have low immunoglobulin levels which might be part of the problem as I've noticed going into crowded places or airplanes with lots of people I can get systems of infections starting even if I'm not drinking. Wondering if you have had your immunoglobulin levels tested and functionality of your immune system such as t-cells, b-cells, lymphocytes, neutrofils, etc.?

Feb 25, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@cummings3 has your son's immunoglobulin levels been checked by an immunologist? Have these tested for bacteria when he gets infections? Please see my reply to @jonnybear619 below about my case.

Feb 25, 2018 · Treatment for chronic epstein barr in Infectious Diseases

@jonnybear619 I just came across this posting and you're situation sounds eerily similar to mine. I've never (that I'm aware of) had mono but have had an EBV infection (based on labs in 1999). I also have had low IgM immunoglobulin levels since 1998. Last year I found out I also have low IgG subclass 1 too. In addition to the general fatigue symptoms and struggle to do day to day activities, including work and brain function I too have been very active most of my life but decades ago i starred to notice I would feel like I was catching a cold after running. Now when I run or do anything physical (hiking, mt biking, running, cleaning my condo, walking around shooting photos for hours, etc) my sputum will turn yellow or brown in the day after doing such activities. I was wondering if you also have low immunoglobulin levels? Also if anyone else on this thread has low immunoglobulins levels please comment. My doctor has been testing my sputum when I start to get signs of a respiratory tract infection and just in last year and half I've had 6 positive bacteria infections – 4 or 5 different types of bacteria. For many years now (over a decade) I've felt like I can even tell the difference when I get over one infection and when the next one starts since any physical activity will start symptoms again. My doctors (and I've been to probably 50 + specialists on my life since these symptoms first started in 1998) can't seem to figure out what to do and really what is causing this. They think the low immunoglobulin levels are a factor but they offer no answers to making me feel better and stop the infections. I have recently ran across research by Dr Nieman at App State University that shows exercise can suppress the immune system and I asked him if he has done any studies on individuals with immunodeficiencies or EBV infections but he hasn't. He said that such research might be valuable. If possible would you be willing to have a conversation off this feed as there's so many more specifics that I think we should discuss to potentially help us get answers.
Thanks!
Roger