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Thanks JK for guidance about MELD and registration. Will do what needs to be done.
We don't want to rush into it and hoping that there is non-invasive cure for PH1 (Primary Hyperoxaluria, Type 1). Maybe being expecting some miracle.
My wife got diagnosed with PH1, there is no cure and LKT is only option.
We have evaluations and registration appointments coming up in Mar-12, 2018 at Rochester. We live north of LA.
We are scared and I am super nervous about how I can do the best as caregiver. Looking forward to you and this group to show me the path and help along the way.