Badges (2)

About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (23)

Apr 19, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I live in us too and have been going thru same thing with my mom. Keep calling until you find a dr who will listen to you. We are doing this exact same thing, go to the website for board certified pain specialists and find your state then do some interviewing. Not all pain Drs are specialists and I've found just because they are specialists does not mean they specialize in the pain from a specific disorder. I told my mom we are interviewing dr.'s they are not interviewing her.

Apr 2, 2018 · Politics of Pain in Chronic Pain

I read the nerves can grow back and be even more painful. The 3rd Neuro surgeon we spoke with said no procedures or meditation will help.

Apr 2, 2018 · Politics of Pain in Chronic Pain

Thank you

Mar 29, 2018 · Trigeminal Neuralgia* in Brain & Nervous System

I hope you don't mind but I am going to share this with my mom's new pain Dr and her previous pain dr. As well my dentist as he said he did not believe damage like this could be done by dental procedure.

Mar 27, 2018 · Politics of Pain in Chronic Pain

Well… this is just a mess but someone posted an article from human rights group on this topic and the article was informative. Also, I found thru the article to go to the board in your state and look for board certified pain specialist rather than pain mgt clinic. Which I found only 3 within a 75 mile radius of my home and to my surprise my mother's pain dr. Was not on the list. I had no idea there was a difference. Would you like to know why I am having to do this? Since current pain Dr. Does not like the outcome he is receiving from backing my mom off her meds and I can only imagine it doesn't meet cdc guidelines he sent her a certified letter stating he would no longer treat her and he would refer her to another clinic. (I think not.) And primary dr. Of 20+ years has dropped her via certified letter as well because his letter said she was rude to a staff member. Well Maybe she was but Mayne she was not, we have been calling for 2 months trying to get help only to be ignored because she is not meeting the 6 month goal set by them. Saw a Neuro surgeon in the meantime said no more procedures would benefit mom she is a typical facial neuralgia and needs to be managed with meds. In addition, found new PCP, and have appt with new pain specialist Thursday. I pray this helps because we found out ahe has small benign tumor right frontal lobe, and these 2 fellas don't like my response to the lack of professionalism and their inability to Dr my mom. I am mortified and when I get my mom back situated and her health seen about which is first and foremost, these 2 crackerjacks are going to be reported at Best. Anyone else out there having issues such as this? Sad state and my parents have 3 different medical insurances. So it's not a Medicaid issue.

Mar 22, 2018 · Chronic facial pain and left sided headaches in Chronic Pain

@olivia52 hi I am currently looking for others with same medical issues my mom has Atypical facial pain same symptoms you have. She has tried most medications and currently her pain clinic which jas done a terrible job with her care jas reduced her medications. I am curious she has eye pain and vision changes but she is not on the same meds. She is on xanax, Percocet, and Tylenol. She has been on lyrics, gabapentin, tramadol, trazodone fluvoxolen etc. Have you been on anything other than current meds? What is the name of the compound? She says she was able to tolerate pain better when she had lortab and had fewer side effects but no one will listen. Do you feel that way like no one listening?

Mar 22, 2018 · Politics of Pain in Chronic Pain

@jimhd, @19lin I actually wrote email to lmills, with the human rights group. Also, sent same message to all 8 senators who are spearheading the alleged "opiod crisis" and the new CARA 2.0 proposed bill. I think I am using the correct terminology. In the mean time, the family member I am dealing with the medical issues has had 1 problem right after another. We have finally had appt with a new NEURO doctor who said that she has Atypical facial neuralgia, there is no procedure to help relieve pain. He is working on getting her into a new pain clinic that should be more knowledgeable. This sight has been very informative concerning the politics of pain. Now If we can just find some medication that will actually help her manage pain to a tolerable level. I keep reading and searching but can't find very much information seems like same medications being used and no real benefit.

Mar 21, 2018 · "Electric Shock" type pain in my scalp! in Chronic Pain

Sounds like some type of facial neuralgia, the facial pain network site has information regarding the different types of neuralgia, causes etc… It may be something else but symptoms sound very familiar… Correct diagnosis is key to treatment.