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Autoimmune diseases, Bone, joint, and muscle disorders, Chronic pain, Digestive disorders, Healthy Aging, Healthy Living, Immune disorders, Infectious diseases, Lung and airway disorders, Neurology (brain and nervous system), Women's health issues, Other

Posts (1)

Sep 26, 2018 · Pyoderma Gangrenosum in Autoimmune Diseases

Hello All!!

I have several autoimmune and chronic pain disorders : Rheumatoid Arthritis, Ulcerative Colitis, Fibromyalgia, MAC, spinal stenosis, poly Inflammatory Arthritis to name a few. I have just been diagnosed with Pyoderma Gangrenosum (PG). I live with chronic pain but this is the worst disease out of all of them!

I have open ulcerations all over my body. Some are open HOLES. They are not infected but are so painful and disgusting looking. I am on 80mg of prednisone and just had my first Remicade infusion last Thursday. That completely knocked me out: nausea, diarrhea,weakness…not a fun time. I also have a very compromised immune system from taking Rituxin. I’m a mess all around. I’m lucky to have a great care team consisting of members of Infectious Diseases, Dermatology, Rheumatology, Internal Medicine, Immunology and Pulmonary. I also have wonderful and supportive friends and family (and a magnificent husband)! What I don’t have is anyone who has PG. If you know someone who has it or if you have it I would love to hear from you. I would love to hear from a specialist who works with this disease. Before all of this hit I was a life coach, counselor, actor and educator. I have my doctorate in Clinical Psychology.

I’m happy to share pictures if you want to see. Thank you in advance!!!