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Wed, Jun 12 7:05pm · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Hello! Sounds like you’ve got a lot going on. Six years ago, I was diagnosed with an ascending aortic aneurysm. Didn’t even know that I had an aneurysm until I collapsed one day out of the blue. Turns out that I have an autoimmune disorder that doesn’t neatly fall into any of the vasculitis categories. I was scheduled for surgery about a month after the collapse. I was a little nervous waiting for the surgery. Doctors said that I shouldn’t worry about the aneurysm rupturing within a month. Unlike you, I didn’t have months to think about a growing aneurysm. All I can say is to continue to live your life as best you can. I am guessing that you will have surgery sometime in the future? Mayo Clinic is a great place , especially if you have a complicated case.

I do hope that you have a good support system with family and friends. I had to rely on many people after my surgeries. I am grateful that I had that support as my recovery was difficult due to complications. (Just so you know, I did not have my surgeries at a Mayo as I live in Southern California.). I am doing much better now. I somehow managed to remain optimistic throughout my procedures and long recovery.

I think this forum is a good place to get feedback and support. There aren’t many support groups out there for people who are dealing aneurysms pre and post surgery.

Best of luck.

Sep 25, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Best of luck to you. We are routing for you!

Sep 24, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Azzurro1999,
Hello! Just under 6 years ago, I was diagnosed with an ascending aortic aneurysm. I was 48 at the time. I was not aware that I had a problem until I just collapsed one day. I worked full time and was very active. I thought everything was fine! Little did I know….

This surgery is a very serious surgery. If you are happy with the surgeon at Regions, that’s great. I would highly recommend that anybody about to have surgery, especially such a complex surgery, should find the best doctor that their insurance will cover.

The surgery is definitely survivable, as per all the post surgery people conversing on this site. The recovery is painful but will gradually get better. You will be in ICU for several days before you are moved to another wing. The nurses will fuss over you (this is good). You’ll be turned from one side to another to prevent bed sores. Moving around in bed will really hurt. The doctor will want you up and sitting, then walking, within a couple days of surgery. You’ll be thinking “are they kidding me, I hurt” but you’ll do it anyway. While in ICU, you’ll be “eating” a lot of broth and drinking liquids. You will be amazed at the number of drainage tubes sticking out of your chest and abdomen post surgery. Dressing changes will be frequent. You’ll learn to love the catheter and bed pan ( ha ha). Sleeping may be a little challenging due to all people coming in and out, especially while in ICU: nurses, phlebotomists, doctors, janitors, nutritionist, heart monitor people, x ray technicians, physical therapists… to name a few.

You may want to consider bringing a few personal items for your comfort: ex. Phone, tablet, favorite toiletries, underwear, slippers.

Consider what type of help you will need at home as well as who will help you at home when you are finally released from the hospital. You won’t be doing a whole lot. Your sternum, heart, aorta and incisions need time to heal. No driving, no cleaning, no cooking, no lifting etc. You may need help showering. A shower stool was a big help.

It is a big surgery. I had two surgeries three months apart for this. Your situation sounds a little more straight forward than mine was. I had unforeseen complications. But here I am 6 years later.

I wish you all the best.

Natalie
So. California

Feb 21, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Boy, that sounds rough. Good that you are able to exercise, albeit modified from what you used to be able to do. I was quite active myself prior to my heart and artery problem as well. I wasn’t even aware that I had an growing problem until I just collapsed one day. Was quite a shock to learn that I had an aneurysm and enlarged heart! You sound a bit like me. Even with discomfort, you just move forward as best as you can. I can’t do nearly what I could do pre-surgery. At least I have found a person who specializes in teaching Pilates for people who have mobility issues post surgery.

Feb 20, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

I have chronic pain in my chest since those surgeries. The best guess from my doctors is that major scar tissue is causing the pain. I’ve tried a few things to see if I can stop this pain (medication, acupuncture, cortisone injections, lidocaine patch) but so far nothing has helped much. Curious if anyone else has experienced chronic pain after surgery(ies).

In addition, my aneurysm was caused due to a genetic marker HLAB 27. Does anyone else have this?

Feb 20, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

I had a Bentall procedure, Coronary artery bypass grafts, mechanical aortic valve. I had the first surgery in Nov. 2012 followed by a complete re-do three months later due to problems from the first surgery.

Feb 19, 2018 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Hi Kanazawa, my husband showed me this Mayo Clinic site. I had my surgery 5 years ago. I haven’t met anyone who has had this type of aneurysm or surgery. I’d like to learn about other people’s experiences with this type of aneurysm.