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Tue, Jun 23 7:07pm · Liver transplant support group in Transplants

@rosemarya My last labs had two vials. One was for Cellcept trough level and the other was for the BK virus. I’m still waiting for the results.

Mon, Jun 22 8:44am · Liver transplant support group in Transplants

That was the third time we’ve stayed at the Kahler. No more breakfast buffet, but not a good idea for transplant patients anyway. Also, I needed to skip breakfast for testing.

Mon, Jun 22 7:44am · Liver transplant support group in Transplants

I had my 2 year checkup at Mayo,Rochester May 11,12. My husband and daughter were with. My daughter is my donor and needed to have labs done, too. We stayed at the Kahler close to the clinic and could walk to the clinic indoors. We brought most of our food with and our room had a mini kitchen. Mayo was taking every precaution to keep people safe. My new kidney is doing very well, but I’m showing signs of the BK virus. My Cellcept dose has been cut back and I’ve been having labs done every two weeks. I’m waiting to hear the results from last week’s labs.

Wed, May 20 10:55am · Transplant anti-rejection medications. What's your advice? in Transplants

I was at Mayo Rochester last week for my two year checkup. Labs and other tests were good, buts my labs showed some signs of the BK virus. I’ll have it retested next week. She said if it comes back with signs of the virus again, she’ll lower my Cellcept dose. Has anyone else experienced this?

Tue, May 5 12:48pm · COVID-19 and Transplant Patients in Transplants

Wow! That gives the rest of us a lot of hope.

Tue, May 5 11:23am · COVID-19 and Transplant Patients in Transplants

We are staying home with only a trip out for groceries every 2 weeks during the early reserved times for elderly and most vulnerable. Otherwise our granddaughter or daughter brings things we need. However, I’ll be going down to Mayo Rochester for my 2 year kidney transplant checkup next week. I’m not much concerned about Mayo, but I’m a bit concerned about the hotel we’ll be staying at. It’s attached to Mayo and mostly Mayo patients use it, so I would think they should be up to date on preparations, etc, but it is still a concern.

Thu, Apr 30 2:03pm · Lessons from caregiving paying dividends during the pandemic in Caregivers

I saw on Facebook a post saying that You know you’re isolated when the quarantine doesn’t change much for you. Luckily, we live on 20 acres and are able to be outside with lots of room to roam.

Mon, Apr 27 9:54am · Transplant anti-rejection medications. What's your advice? in Transplants

A after my transplant two years ago, I was losing a lot of hair, I contacted my transplant team at Mayo and they referred me to the specialty pharmacy. I was told by them to take 1000 mcg of biotin a day. It really helped. I no longer take it. My hair seems to be back to normal.