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Posts (113)

Fri, Mar 27 11:15am · Lung Transplant Post-op? would like to hear positive stories in Transplants

I had an appointment for April 12-13 for my annual checkup. Mayo called and we changed it to May 12-14. I was able to get the money for my prepaid hotel room back. Now, I’m hesitant to rebook, since the May appointment may be also be postponed. My daughter ( the donor) always comes with as well as my husband, who has moderate dementia. I will need someone with for the biopsy. There is no where for my husband to go and he shouldn’t be alone. I hope they’ll make an exception for him to be with.

Sun, Mar 22 12:34pm · COVID-19 and Transplant Patients in Transplants

I was told by my transplant nurse team at Mayo that they don’t recommend taking vitamin C. Do you think that may be because vitamin C is a concentrated higher dose than eating an orange or other fruits?

Tue, Mar 17 7:26pm · COVID-19 and Transplant Patients in Transplants

Our one and only small town grocery store is reserving 6-7 am for seniors and immunosuppressed or the most vulnerable, when it’s been freshly sanitized. 👍🏻

Tue, Mar 17 11:14am · COVID-19 and Transplant Patients in Transplants

My husband has dementia so I am his caregiver and the one to do the shopping. However, I think what difference does it make, because if he did the shopping and caught it, then I be exposed. Luckily, we have family that don’t live with us, that we can rely on if need be. I’m an almost two year kidney transplant survivor.

Sun, Mar 15 12:53pm · COVID-19 and Transplant Patients in Transplants

My annual is mid April. I haven’t gotten anything from Mayo yet. Last year my 24 collection arrived early. I collected on the day that we drove down to Mayo so it was ready to turn in the next day when I went in for labs.

Mon, Mar 9 9:20pm · Kidney transplant - The Journey from the Donor's Side in Transplants

I didn’t get the impression that she was implying that vitamin C was affecting my tac levels, but that they don’t recommend it in general because it boosts the immune system. The subject came up when I was contacted because my tac level was too high and she asked if anything I was taking had changed.

Mon, Mar 9 8:04pm · Kidney transplant - The Journey from the Donor's Side in Transplants

I was recently in contact with my transplant nurse team because my tacro was was too high. I was asked if I’d changed or added any meds or supplements. I said that I’d added vitamin C. I was told that vitamin C is not recommended because it strengthens the immune system, working against the immunosuppressants. I stopped taking it.