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Sat, Mar 28 7:00pm · Lung Transplant Post-op? would like to hear positive stories in Transplants
Fri, Mar 27 11:15am · Lung Transplant Post-op? would like to hear positive stories in Transplants
I had an appointment for April 12-13 for my annual checkup. Mayo called and we changed it to May 12-14. I was able to get the money for my prepaid hotel room back. Now, I’m hesitant to rebook, since the May appointment may be also be postponed. My daughter ( the donor) always comes with as well as my husband, who has moderate dementia. I will need someone with for the biopsy. There is no where for my husband to go and he shouldn’t be alone. I hope they’ll make an exception for him to be with.
My husband has dementia so I am his caregiver and the one to do the shopping. However, I think what difference does it make, because if he did the shopping and caught it, then I be exposed. Luckily, we have family that don’t live with us, that we can rely on if need be. I’m an almost two year kidney transplant survivor.
Mon, Mar 9 9:20pm · Kidney transplant - The Journey from the Donor's Side in Transplants
I didn’t get the impression that she was implying that vitamin C was affecting my tac levels, but that they don’t recommend it in general because it boosts the immune system. The subject came up when I was contacted because my tac level was too high and she asked if anything I was taking had changed.
Mon, Mar 9 8:04pm · Kidney transplant - The Journey from the Donor's Side in Transplants
I was recently in contact with my transplant nurse team because my tacro was was too high. I was asked if I’d changed or added any meds or supplements. I said that I’d added vitamin C. I was told that vitamin C is not recommended because it strengthens the immune system, working against the immunosuppressants. I stopped taking it.