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Jul 15, 2018 · Applying for Disability in MAC & Bronchiectasis

I applied through an attorney and was approved in just under 3 months

Apr 9, 2018 · Does Mayo do anything with Stem cell treatments for copd in Lung Health

The lung institute just wants your money.They're a bunch of crooks. The research is ongoing but it isn't there yet.

Mar 12, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

I'm taking OFEV which is the other med available for IPF. I chose Ofev because I'm really fair skinned and with the increased sensitivity to the sun with Espriet I'm afraid I would just explode in the sun.

Mar 12, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

I have IPF and PH too. What's the med that you're talking about?

Mar 12, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

When I was first diagnosed in June of 2017 I went through the why me pity party for a little while. When I first heard the doctor say IPF I had no idea what it was and when it was explained I kinda went numb. How could this be, I don't smoke? I went home and made the mistake of googling it and saw the 3-5 year prognosis.
I cope with the diagnosis by deciding to take control of my situation instead of continuing to let it control me. I got into pulmonary rehab and joined a gym to exercise on the other days, I joined weighwatchers and started eating healthy, I went to the right web sites and forums and learned as much as I could about my disease.
I highly recommend the book " Ultimate Pulmonary Wellness" by Dr Noah Greenspan. It has saved me by teaching me how to live with the disease instead of just waiting for it to kill me.
I've decided that I'm not going to die from IPF. I'm going to keep fighting until they find the cure (there are lots of things that look promising)or I lose enough weight to get evaluated for a lung transplant.

Mar 11, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

Pulmonary Hypertension are scary words and it's easy for your mind to jump right to "I'm dying" . I wouldn't worry about things until you see the cardiologist and get an echocardiogram. My PH showed up when I was getting a high resolution CT scan to track the progress of my IPF. My head went to the scary place for a short time. During the echo they will measure what your actual pressure number is. When I got the results my doctors told me it was very mild ,don't be concerned and they will monitor it. There are also some medications that can slow down the progression.