Member has chosen to not make this information public.

Pages (2)

Posts (203)

Thu, Mar 19 6:13pm · Transplant Evaluation - What to expect in Transplants

Do you qualify for Medicaid?

Mon, Mar 16 1:15am · Transplant Evaluation - What to expect in Transplants

Don't hesitate to call scheduling and ask if you can move your schedule around. Let them know you have 2 free days. Sometimes they can do that…stay in touch with them and watch for phone messages. I didn't have those issues but they may have to do different tests.
Who knows…maybe the Corona virus has them tied up..

Wed, Mar 11 1:14am · Transplant Evaluation - What to expect in Transplants

Hi! I go to Mayo Jax and can help you. The eval takes about a week 10 days and is rigorous. Guess it depends on your condition though.
We stayed at the Holiday Inn Express Med Ctr on Hodges. It is clean, reasonable and newly remodeled. Breakfast too but you will be fasting.
They will draw a lot of blood and you will get results on your phone quickly. Scheduling will work with you ahead of time and email your schedule well in advance. All sessions are excellent and very informative. Take notes and write down questions each night. Your eval will have you interview with psychologists, social workers, surgeon, financial people and more. Its all so beautiful there you won't believe its a hospital. I just had an EDG and colonoscopy and it was so easy and the staff was awesome.
I used to live near Mayo so I know my way around. Traffic is awful around JAX.
Let me know if you have questions…I will help you through the maze…that's what this group does.
Good luck!

Wed, Mar 11 12:39am · Transplant Evaluation - What to expect in Transplants

I think you are going to Mayo Jax
I was there last week for an EDG and Colonoscopy. I have Stage 4 cirrhosis with a Meld of 8. Been this way for 3+ yrs! I have been to the eval. and it is rigorous! You will learn sooo much
Keep notes and write down questions every night you are there.
All of the Drs. are amazing. I have been to 4 on the team. The PAs are very important and your link when you have concerns going forward….they are awesome too.
Let us know how you do and ask me anything.
We may run into each other someday at what I call Disney World for sick people…LOL

Thu, Mar 5 6:31pm · Transplant Evaluation - What to expect in Transplants

@ beckyy39
Hi! I have portal hypertension too. Just had a EDG n JAX. I had small varices in my prior one that I thought might need banded this time. The Drs said they were hardly there. Likely due to Propanalol. I will be holding on to my Meld 8 as long as I can but they caution me that things could change quickly and that I must be prepared. They found a sissle cyst that we are awaitng biopsy results…always something…

Wed, Feb 26 11:41pm · Liver transplant support group in Transplants

@ please tell them to make sure you are out..
I know they don't want you to have any more anesthesia than necessary but that is ridiculous! Happened to me once with an EDG…awful!!! Have one next Mon. I will be telling them and thinking of you.

Wed, Feb 26 11:24pm · Liver transplant support group in Transplants

are all related. No one has confirmed that as yet. Grhhhhh!

Tue, Feb 25 7:45pm · This and That and Talk - My Transplant in Transplants

Nearly identical to my path. Been on Rifaximin 2 years same for the diuretics. Meld still 8. Waiting for the liver to revolt..tee hee. None of us are alone…