Member has chosen to not make this information public.

Pages (1)

Posts (146)

22 hours ago · Liver disease itching in Transplants

Lol…now I get to study the heart! Abnormal EKG and the worst bloodwork Ive had in a year. Ammonia level is HH at 125 , creatine is up too. Just got these labs in my own hands for analysis…keeps me busy.
Im pusuing a cardio appt at Mayo, the former head of the cardio transplant group at Tampa General too. My hapatologist at TGH s working on that one too.
Meanwhile..my heart is fluttering…must be Spring!

2 days ago · Liver disease itching in Transplants

Hi Miss itchy!
I have had Stage 4 cirrhosis for 3 years. Like
You, I got the itchies. I went to my regular PcP, 2 dermatologists and did a ton of research. They diiagnosed Ecxema which I believe is due to my poor auto immune system. I scrathed myself silly at night. Steroid creams helped a little but I used different products on different days. I tried everything Aveeno.shampoo, body wash and their anti itch cream worked pretty well. Then ther was Lidiocane RX ,Triamcunolone RX..best one, Doxi gaba cream, Elidel. And apple cider vi negar on my hair and in a tub.
None of that stuff cured it…it had to leave in its own sweet time…about 3 mo.The doc gave me hydoxcine to help me sleep.
So sorry you got this happy side effect. Always check with your doc before you do anything because we all are different.
Good Luck
PS Get to the best hepatologist you can find ASAP. It takes time to get appts.
Keep your PCP if he knows anything about cirrhosis. It is importanr to get one that knows about it and is willing to work with your hepatologist.
I have a great one who had a patient who had a transplant and is doing fine. I have an excellent hepatologist who is head of the transplant team in Tampa…45 min away. I also have been evaluated at Mayo in Jacksonville. Just cant tell you enough good things about them. I am too early but have developed a heart issue that could change that. So now I am trying to get a cardiologisr appt. At Mayo or Temple General. Thank God I have good insurace!,

5 days ago · Liver disease itching in Transplants

My friend had 2 ERCPs done in a week Finally they transferred him to a hospital that did a EUS Endoscopy with ultra sound. They removed a 9cm gall stone from his common bile duct!
Third time is the charm…good luck to you

6 days ago · Liver disease itching in Transplants

Heres hoping everything settles in and you can avid the surgery..

Mon, Mar 11 10:07am · Liver disease itching in Transplants

Thanks..its gone for now and I have no idea which one of the meds did it. I think its the auto immune issue that is triggering it so now Im searching for a way to keep it from coming back! Miserable stuff.
This is Bike Week in Daytona….are you going?? Lol

Fri, Mar 1 9:23pm · Anyone have tips on sun protection? in Transplants

Now that my ecxema has subsided and it is 80• and sunny, my skin is having some sort of rebellion. My face is breaking out like a teenager and that never happened to me! So…I am visiting my facial esthetician for some guidance. She found some very good tinted sun block that I will try. I will keep you posted….

Fri, Feb 15 9:16pm · Liver transplant support group in Transplants

Realizing you are depressed is half the battle
Understanding what makes you depressed is the puzzle.
My problem is I have so many things to be depressed about…Im overwhelmed. So since I cant figure it out…I let it all go and focus on one little thing I can do to make someone feel happy each day. Every night I think about that one thing I did.
It helps me…
When that doesnt work…get on this Connect line..we are here for each other.

Fri, Feb 15 9:00pm · Liver transplant support group in Transplants

Powerful stuff coming from you to someone who desperately needs it.
Keep good thoughts in ypur minds. HIGS TO YOU BOTH!