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6 days ago · Pancreatic Cancer arising from IPMN pancreatic cyst in Pancreatic Cancer

@colleenyoung
It is a 5 hr trip but well worth it. I call it Disneyland for sick people. They watch me and I go up every 6 mo. for testing. So far, I am holding up with minimal deterioration. Hoping that we can get Gary up for evaluation and a good outcome. In my opinion there is nowhere else. Thanks for the link. I am used to a full plate but need the support of this group to keep me sane!

Sat, Jan 11 9:51pm · Pancreatic Cancer arising from IPMN pancreatic cyst in Pancreatic Cancer

Guess I need to get in on this. Im on the liver transplant section of Connect… as I am Stage 4 but not yet listed. Meanwhile..my caregiver/friend had his gall bladder removed last year and it has been a nightmare since. They now want him to have the Whipple procedure for a cyst in the head of the pancreas that could be cancer. He is having the CA 19 9 tumor marker test on Mon. When should he get a second opinion and how long will it take if the surgery is needed in a hurry? Dr. is well respected and does 145 year. Mayo Jax is where I would go but not sure how soon they would see him.
Ugh! Never a dull moment…he is scared and has no family. He depends on me as a sister and medical advocate..I am becoming medically very well educated..not by choice.
I will keep you all posted..best i can.

Sat, Jan 4 3:59pm · This and That and Talk - My Transplant in Transplants

Gaylea1…..seeing all you have been thru… I am sooo proud of you!

Dec 29, 2019 · This and That and Talk - My Transplant in Transplants

Now that's good medicine!

Dec 27, 2019 · This and That and Talk - My Transplant in Transplants

I have been following along and agree that communication with your docs on
pain are good practice for all of us.
I visited my own GP today due to bronchitis and stomach virus. Fighting
this over Christmas pre and post. Today as a belated present…my doc
ordered up 2 shots. Prednisone and antibiotic..hope they work..sick of
being sick.
Haven't been real active lately as my beloved cat Cami developed throat
cancer and had to be put down. It went very quickly and there weren't any
viable options. She was my therapy and love. So..seeing my unhappiness my
daughter, who lives next door helped me research and find my new Christmas
rescue kitty! Maggie is my new Maine Coon companion and is providing me
with more energy and happiness than I thought I ever had…When I'm
exhausted she is right there on the bed with me. Follows me
everywhere..even to the bathroom in the middle of the night. She is
extremely smart which challenges my brain to focus. And of course she is
close to my daughter too…should I have to go to the hospital.
Liverwise….I'm doing a great job managing so far they tell me. So I keep
reading and following orders…
Best wishes to all over this holiday season.. it can be stressful for many.
We are in this together and as we approach 2020, I am ever so grateful for
your advice and support. HAPPY NEW YEAR 2020!

Nov 21, 2019 · Liver transplant support group in Transplants

@rowdyramsey
We all need each other…

Nov 21, 2019 · Liver transplant support group in Transplants

Make that list!!! Take your husband and review the questions with him beforehand. His input is important too! As soon as your appt is finished, sit down and go over the list and the answers with your husband.
Get your bloodwork done whenever YOU want. Build a relationship with your PCP and share your concerns. Those blood test results help your peace of mind and give you quick info on any changes. Your PCP can then share with your liver specialists.
You are in charge of YOUR life!
If you have opportunity….go to Hopkins!!
Good luck!