Glad the hard part of your journey is behind you!
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Not ignoring you…had heart catherizatuon all good. 2days later I fell on the hospital side walk and broke 3 bones in my hand and wrist my elbow and rib. How convenient it was at the emergency room entrance! Lol you cant make it up! Wont be texting much but please know I am reading everything and thinking of all of you…
Yes I agree…the good news is that eveything they have checked was fine
The cardiologist who is head of the heart transplant group at TGH is doing the procedure and has assured me that it wont have any impact on my waiting. He said if there is something going on they will fix it while they are in there. Mayo has agreed to the procedure.
I think they are checking all the weak links before they list. We will see. Know more tomorrow.
Well I am wondering if the Drs have any clue what path this disease will take. Going to my hep Dr tomorrow and that is one of my many questions for her.
The itchiness from excema is gone for now…but still on the fri ge. Now they are concerned about my heart so I have a heart monitor for 14 days and a catherization next Wed. Oh yes..a sleep study and test too.
The MRI I had at Mayo was all good except for a spot they found on the lung..ultrasound cleared that…
If they could only tell me what comes next…..that doesnt happen with this disease…we are all different. PS I am very fortunate to be a patient of the transplant team at Tampa General Hospital and Mayo Jax Transplant team. I have meld of 6 down from 8. So, I know Im getting very good care and they traet me as if my meld were 20. Not on the hot list deemed too early.
As I figured…you put it so well too. I expect it to be something in me that I will treasure..and protect..like a baby. AND we know for sure we dont want to go back to that place in time of misery. Thanks for sharing..
Wow..you live an exciting life! Lol. Im just waiting for a transplant and have all this excitement ahead of me…
Im learning from everyone on this site and it helps me to accept my future.
So glad you are improving and going home…not in an ambulance!
Keep sharing when you can…and never doubt your instincts!