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Posts (8)

Jun 21, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

Hi, My husband also has PPA and Posterial Cortical Atrophy. It is very challenging to communicate to say the least! He gets frustrated not being able to get the words out and I just try to guess what he means. I encourage him to keep trying but he is saying less and less. I continue to pray for patience for him and for me. Look for the small blessings in each day and let go of the frustrations.. Not easy but we have to keep our sanity somehow!

May 25, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

I definitely understand your living one day at a time! Since my husband was diagnosed I have just taken each day as it comes and at the end of that day look for the blessings we had. Sometimes it is hard to find that blessing..Some people think I have a stoic attitude about his illness but it is more of a coping mechanism I think. I can't look at what we had and mourn the loss or think about what is to come and again mourn the loss, so I choose to live in the day and be glad for what we have. He was my rock through spinal surgery and cancer and I need to be his rock now. He is an amazing person who has touched me and my family with so much love and I intend to stay strong for him.
Thank you for sharing. Strength and peace.
Remi

Apr 9, 2018 · Looking for suggestions on clothing in Caregivers

Thank you so much! I will be checking that site out today!

Apr 9, 2018 · Dealing with dementia and sleep apnea machine in Caregivers

Yea!! He has decided to wear hos mask again! I hope this trend continues!

Apr 9, 2018 · Looking for suggestions on clothing in Caregivers

My husband is having trouble with his belt on jeans as well as buttons and zipper. I am looking for all elastic waist jeans. Will they stay up without belt? Any good brands? Thanks!

Apr 4, 2018 · Dealing with dementia and sleep apnea machine in Caregivers

I am caring for my husband who has dementia. He also has sleep apnea thus a machine to use at night. The machine has a headgear with a nose mask. It is becoming more and more upsetting for him to use the machine. Any suggestions on how to make it less frustrating for him?

Mar 13, 2018 · Caring for someone with dementia / Alzheimer's in Caregivers

I am caring for my husband too! I too would love to get advice and share experiences! Hope to find out I am doing the right things, this is such uncharted territory for us.

Feb 1, 2018 · Posterior Cortical Atrophy (PCA) in Caregivers

Yes my husband has p.c.a. and he also has primary progressive aphasia. He was diagnosed in 2014. I have taken early social security to stay home and care for him. Just taking one day at a time, not sure how else to cope with these diseases.