Mayo diagnosed my husband with pca in 2014. If you can get in there they will find an answer for you.
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That is the hard part to think about… I don't know how or when I will be able to have my husband go into memory care. He knows who I am still and I know it will be devastating to him. When he was diagnosed I was led to believe he wouldn't realize what he was losing but he does seem to know and is frustrated. He thinks if he tries harder to talk he will get better. Makes me sad that I can't help him.
He is pretty much totally dependant on me so it will be a huge empty feeling for me to. We were forced into early retirement because of this disease not at all what we had planned!
My husband was diagnosed with primary progressive aphasia at 64. He was also diagnosed with posterior cortical atrophy at that time. That was 5 years ago and in that time he has gotten a lot worse. Most of the tome I have no idea what he is talking about. I am sometimes able to figure it out…that's a good day! He gets really frustrated with his inability to say what he means.
He also has a lot of visual and cognitive issues. I have to help him with pretty much everything. It is a very demanding, stressful, and scary illness.
Stay strong and take care of you!
Hi, My husband also has PPA and Posterial Cortical Atrophy. It is very challenging to communicate to say the least! He gets frustrated not being able to get the words out and I just try to guess what he means. I encourage him to keep trying but he is saying less and less. I continue to pray for patience for him and for me. Look for the small blessings in each day and let go of the frustrations.. Not easy but we have to keep our sanity somehow!
I definitely understand your living one day at a time! Since my husband was diagnosed I have just taken each day as it comes and at the end of that day look for the blessings we had. Sometimes it is hard to find that blessing..Some people think I have a stoic attitude about his illness but it is more of a coping mechanism I think. I can't look at what we had and mourn the loss or think about what is to come and again mourn the loss, so I choose to live in the day and be glad for what we have. He was my rock through spinal surgery and cancer and I need to be his rock now. He is an amazing person who has touched me and my family with so much love and I intend to stay strong for him.
Thank you for sharing. Strength and peace.