Member has chosen to not make this information public.

Posts (282)

6 days ago · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

We cannot back down in the face of this. If you have someone prescribing pain meds and they decide they don't want to do that anymore they are legally responsible to find another prescriber. We need to stand fast and sue if that is what it takes. We are not the opioid problem and our doctors didn't cause it. When they quote you the body count know that over half of it is from Heroin, Meth and other street drugs. Also most of the opioid overdoses are caused by counterfeit pills being sold by drug gangs from around the world. They mix them with fentanyl which is impossibly hard to titrate into the doses they are going for. The government cant get at these dealers or in some cases are being paid off by these dealers so they come for us and our Doctors. Wr are the low hanging fruit. Repost: WE ARE NOT THE PROBLEM. Paint in on the pharmacy walls: WE ARE NOT THE PROBLEM!!!

Thu, Jan 9 9:45pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

That's a shame. I hope they knew that morphine was a drug that had worked for him in the past. They knew it didn't work for me. I had it several times orally and got no relief from it., I've also heard of people who have a lot of stomach upset with morphine. Because of the seriousness of the surgery to implant the pump, my Doctor wanted to make sure he was using a drug that worked for me. I got good relief from Dilaudid, (which is much more powerful), so they used that. They also tried me on Fentanyl but that also didn't give good relief.

I've since had Gene Sight testing, ("Gene Sight), is a brand name). It predicts which drugs you will metabolize well. They can test for Mood drugs, Psychotropic meds and pain meds. I learned I was getting the right pain med but a less effective med for depression and I switched with good response. Ending the crap shoot of trying to find which drugs will work for serious mental illness is the greatest thing that this gene survey accomplishes. I have a son who needs those drugs and people can spend years trying different thing that dont work or make them sick which is horrible when their needs are so acute. Turns out that it's not that certain drugs only work on some people and hit or miss is the only approach. Whether certain drugs work or not depends more on the bodies ability to metabolize them. Mayo now is offering a similar service but it is much more expensive than Gene Sight, which as far as I know was the first test of its kind. Any Doctor can obtain it for a patient. They have to register with the Gene Sight company, a process which is free and takes them about 15 minutes. Still most doctors are resisting doing this. I think it offends their egos to have a test tell them which med they should prescribe. I wish your husband had access to it when it might have helped him. Love and Blessings

Tue, Jan 7 8:19pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

I am appalled that he was given those drugs for cancer pain. I was given Lyrica for the tingling in my feet caused by large doses of chemo. I was in a very compromised situation when this happened, not thinking clearly and definitely experiencing "chemo brain". Lyrica is really expensive and they know damn well it doesn't do much for pain. Lyrica is no better than gabapentin but costs much more. What is really insidious about the scam is that if you take 25 mgs. per day and I take 1200 mgs. per day, which was my actual dose,m we both pay the same price. There is no relationship between how much you use and what you pay. You pay for the privilege of using the drug. Lyrica was instrumental in inspiring the now common term among honest Doctors and Pharmacists, "There are no new drugs, just new names. The thing with pain is that it can really vary in intensity from day to day based on your activity, your mood and the amount of stress you are experiencing due to Medical personnel treating you like a drug addict. It's one thing to pull this smoke and mirrors game on someone with a bad back but to do it to someone with cancer is absolutely unconscionable. Most things like off label uses for drugs that don't work for pain, CBD oil, stretching, meditation, back braces and all forms of electrical stimulation are mostly snake oil and lies that at best will trigger a placebo effect, which can be very helpful but there are better, more effective and cheaper ways to use the placebo effect to improve your health. I am treated for chronic and persistent pain resulting from cancer by one of this countries most respected authorities on pain treatment and deep brain stimulation. According to him, implanted stimulation works for some people with back pain, the rest of it is a bunch of b.s. I saw him yesterday to have my intrathecal pain pump refilled. A little ritual we repeat every 12 weeks. I get the miniscule dose of 3.5 mgs. per day of hydromorphone. It has the effect of about 1000 mgs. taken orally. It has the side effects of 3.5 mgs. or no side effects at all. No sleepiness, no constipation and certainly doesn't get me high. The patient is beyond the suspicion of half assed doctors and nurses who think anyone on pain meds is a drug abuser. That's the best part right there. The availability of these pumps is increasing and just about all insurance and medicare pay for them. I don't think the availability will continue to increase as the number of Medical students pursuing the field of pain management is dropping. When the truth is known about the opioid crisis it will be revealed that the manufacturers were selling these drugs out the back door to organized crime and that well meaning doctors were not the cause. That's what we learned about Quaaludes in the 1970's. If you don't use opioids to get high, you don't experience the euphoria they can create and you do not get addicted. Truth, Love and Blessings

Tue, Jan 7 2:48pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

I Take Baclofen to prevent near constant cramping. It is also a muscle relaxer. I take it at night so I don't know if it makes you sleepy.

Mon, Jan 6 10:49pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

You must not have heard, pain is no longer a problem. It doesn't exist. They don't really have to do anything for you. It's the answer to the opioid crisis. They can't get ahold of the drug addicts and the dealers to deal with them so they're dealing with you. Congratulations you and I and people like us are what it's called low-hanging fruit.

Mon, Jan 6 10:45pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

Pain can be caused by nerves which are impinged or damaged. It can also be caused by muscles that are damaged. All pain is transmitted by nerves but there are many many sources of pain.

Mon, Jan 6 10:44pm · Terrible reaction to Gabapentin 300mg cap in Chronic Pain

Lyrica, (Pregabapentin), is just as bad. Left me with somulance. My pain
guy, a top neurosurgeon, a true authority, says It's useless for most pain.

Mon, Jan 6 1:14pm · New Daily Persistent Headache in Chronic Pain

I don't know anything about headaches but I do know pain meds. Narcotics need not be addictive if used properly. If you don't get high you should not get addicted. I use them and am not addicted. 20 some years. I have an interthecral pain pump. I get 3.5 mgs. Of Dilaudid per 24 hours. Meds delivered this way are up to 300 more times affective. I get my pump refilled every 12 weeks. I still have pain but It's very bearable. Large oral doses, 260 mgs. per day were no longer affective for my pain. It's are getting easier to find Docs who do them. Check it out.