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Aug 11, 2018 · Multiple autoimmune diseases in Autoimmune Diseases

John, thanks for the ophthalmology input. I posted asking about VKH disease some time ago but no one else seemed to have it. Will look into AZ Mayo.

May 6, 2018 · PMR Anyone? in Autoimmune Diseases

Just being picky: but they’re not bacteria—they’re spores. And you’re right, valley fever can be lifeThreatening.C

Mar 6, 2018 · VKH (Vogt koyanagi Harada) : in Autoimmune Diseases

Hi, Bluebell! It's certainly a rare disease! The cataracts aren't ripe yet (love that ironic term), but I'm feeling the VKH effects on my reading. Very frightening and annoying as well. (I'm a retired English lit prof, so trouble reading is something I'm impatient with.) I'm on my way out of town for a bit, but would very much like to PM you when I return. Thanks! c.

Mar 6, 2018 · VKH (Vogt koyanagi Harada) : in Autoimmune Diseases

Thanks so much for the links, John. I'd already checked a few of them (e.g., NIH) , but will now follow up on the others you've posted.

Mar 4, 2018 · VKH (Vogt koyanagi Harada) : in Autoimmune Diseases

One of the troubling aspects of treatment is the vulnerability to other infections. I began a course of prenisolone; that was replaced by methotrexate. I had to stop the latter (with the specialist's agreement) when an extended bout of the flu lasting two months ended in severe bronchitis. Now I have resumed the methotrexate, as my vision gets blurrier. I also have cataracts in both eyes, so blurriness may come from them as well as VKH. One day at a time.
Would appreciate hearing from others fighting this disease.