Badges (2)

About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (26)

Thu, Mar 7 10:02am · Treatment for chronic epstein barr in Infectious Diseases

Naltrexone is most commonly used to help prevent alcohol and drug abuse. I personally would not use this drug to help the Epstein Barr Virus no matter what anyone said about it.

Fri, Mar 1 8:21pm · Treatment for chronic epstein barr in Infectious Diseases

@tmccarthy2019 Here is just a bit of what I can recommend. Unfortunately you need to read through this web site and gleen what you can from previous comments. It's time consuming but worth the time. No one person can give answers. So to answer one quick last question above… I think Chronic Epstein Barr Virus, and Chronically Active Epstein Barr Virus are the same. Next it was important that you mentioned that you had mono before. Because first time mono does not mean that you have to worry about it becoming a chronically active virus. Next, continually keep in mind that this is a virus. When ever you get confused… Look for treatments that are specifically for a virus. Next, don't worry about being infectious. Usually you are only infectious the first time you have mono. Chronic EB Virus is not infectious! Next, find a good Naturopath. No other type of doctor knows anything about CAEBV. Do not go to infectious disease docs. They will not help you. What I have found to help the swollen lymph glands and fatigue are daily:
500mg L-LYSINE or more for the virus
Good quality Vitamin B-12 and B-6 for energy
Vitamin C
Alpha Lipoic Acid for cell renewal
Some people have found luck with Monolauren
A prescription med of Acyclovir has helped many.
I do hope this information assists you. Best to you.
Lisa

Sun, Jan 27 5:32pm · Treatment for chronic epstein barr in Infectious Diseases

@momnxtdr I think a child should be free to eat all food groups and types unless they of course show an allergic reaction. All meats, all veggies, all fruits, whole grains and even pizza (unless actually allergic to wheat). Even dare I say a dessert once in awhile. At my age (I am 61!!!) I am trying to eliminate some foods to help my chronic EBV but it is not proven that a restrictive diet helps. Lots of vitamins for sure and lots of fruits (don't worry about the sugar from fruits) and veggies.

Sun, Jan 27 9:21am · Treatment for chronic epstein barr in Infectious Diseases

@oceantroll This is the first I have heard of low dose immu otherapy as a possible way to reduce the symptoms of chronic Epstein Barr Virus. Interesting, thank you! I also got the virus for the first time around Christmas 10 years ago. I noticed that the activity on this web site increased dramatically after Christmas this past year. Also interesting.

Wed, Jan 23 11:50am · Treatment for chronic epstein barr in Infectious Diseases

I agree with the above! I went to an Infectious Disease specialist before I heard about Naturopath MDs and they said nothing coukd be done for chronic EB virus. I am going to a fabulous Naturopathic MD now. I don't even go to regular doctors any more. Just her. She can prescribe any prescription meds and knows a ton about EBV, CFS and overall the most knowledgeable doc I have ever been to. Keep searching.

Sat, Jan 19 10:20am · Treatment for chronic epstein barr in Infectious Diseases

Your son does not have to take elderberries if it doesn't fit for him. I am gluten free too but not sure if it helps. I try to stay low sugar as well. I eat all meats and lots of veggies.

Sat, Jan 19 8:40am · Treatment for chronic epstein barr in Infectious Diseases

I think you are the first to post regarding a 7 year old. I agree with the advice and foods listed so far. I have battled Chronic EBV for 10 years. The best treatment for me is 500 mg ( maybe lower though for a 7 year old! ) Of L-lysine daily. That and a good brand of B-6 and B-12 for energy, Alpha Lipoic Acid for cell renewal, and EXERCISE as hard as it is to do it, I feel amazingly better after having an enjoyable fun and active activity. The huge one for me was the L-Lysine. Good luck. So sad.