cloe001 (@cloe001)

Reread what I wrote, I was just writing to empathize with their frustration & share what I have. Most people on here are sharing their conditions & questioning what is going on with them. It is not a forum to call down & shame someone. Was definitely not diagnosing someone, just asking them to look at what I have & if they are suffering in the same way. Don’t run people off, we need each other. Misinterpretation & ignorance of what someone is trying to share is frustrating as well. You are very knowledgeable and share such helpful information, I appreciate that from you.

Thanks to both of you!!!! I’m going over to my WalMart app & ordering one now.

I have trouble with on/off hoarseness & pulmonologist referred me to ENT. Was scoped & thank God they didn’t find anything. My pulmonologist ended up taking me off one of my inhalers & it helped a lot. Good luck! It’s hard when no one understands what you’re saying. But what is most frustrating is trying to try to pay bills with computer voice driven apps ie Sprint ATT. Takes a sense of humor for sure!!

Yes, definitely. Read about Hammons-Rich Syndrome. It may not even relate to your condition, but I got it by taking antibiotic Macrobid, had allergic reaction, & almost died. One of the things that happens is the lung tissues (I can’t think of medical term) turn to glass, break & fill up your lungs. It is a rare interstial lung disease. This may not have anything to do with you but I don’t like what your doctor said. God bless you & I hope your new doctor is great!

I’ve been looking at it too & after researching all of them I think this will be the best choice. I’m on the fence because so many people say why waste your money…just clean it yourself. Talk me into buying it. I want it & need a nudge. Thanks for taking time to read this!!

I read many cautioning articles regarding the So-clean & toxic ozone exposure. I am looking @ the 3B LUMIN CPAP cleaner that is ozone free & uses UV that sanitizes to 98+ germ removal. It retails at $249. Have any of you heard about it? Welcome advice. Thanks !

I so relate to your thoughts. Prayer, the support of others, and taking one positive step at a time away from isolation & negative thinking is helping me. One day at a time has turned into the next 5 minitutes at a time … the day is way too big for me. Peace be with you & remember you are not alone.

Amen sister !!