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Mar 13, 2018 · UNOS changing how HCC scores are tabulated? in Transplants

Thanks so much for that explanation-very helpful!

Feb 24, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

Thanks so much I truly appreciate it!

Feb 22, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

Thanks For your response Rosemary, so good to talk to people who understand and so encouraging. He will be transplanted at Mayo in Phoenix. There is a transplant house there, but we don’t want to leave our Golden retriever behind for that long of a period so we needed a place that would allow pets.

Feb 22, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

Hi JoDee-They told us we have to be at transplant center within 6 hours rather than 10 so that is why he is having to relocate as that is cutting it very close for us. We also found a very reasonable place to rent close to the transplant center. Thanks so much for encouragement, needed to hear that! Hopefully you guys will get the call soon with the recent exception points added. Keep us posted:)

Feb 21, 2018 · Are there any other pre-liver transplant caregivers out there? in Transplants

Hi everyone. My husband was just recently listed for liver transplant He is pretty low on the list right now but will get exception points after 6 month waiting period. He had the TACE procedure recently with partial response and course of action is now to do reimaging in 3 months. We are both very anxious about what can happen during this 3 month period as he was getting regular screenings prior to the HCC diagnosis and nothing was seen in the 3 months prior to the diagnosis. I agree this is all so overwhelming and would love to connect with others who understand what what we are going through as well. We also live 5 hours from transplant center and my husband will need to temp relocate once he is higher on the list. I will need to stay behind to continue working up until he is called for transplant and will join him. I am a planner so the uncertainty of when this will be makes it difficult. I’m thinking ahead and guess I will go to work everyday with a packed suitcase once he is higher on list? Are there any caregivers out there with current similar situation or post liver transplant recipient who experienced similar situation?