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Feb 1, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

My doctors made me crazy about Giant Cell Arteritis. Several times I have had pain in my temples and called them in a panic. Once I even went to the Bascom Palmer eye institute emergency room. I hope you are able to rule this out by speaking with your Rheumatologist. When I questioned my doctor about the right protocol if I felt a symptom he said that he would put me on an increased dose of prednisone. As it is, none of my frightening incidents were the feared complication. Good luck and hope you don’t have it.

Jan 29, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I believe i am the person you were looking for in your quest to send a private message. libbylea

Jan 27, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I would like to know how many others have had a mysterious rash.

Jan 27, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I, too will be seeking alternative treatments. My first venture into this is an appointment with a nutritionist who is recommended by my primary physician. My primary and I are in agreement as to the avoidance of taking prednisone. In reading another post, I see that one person has been successful with physical exercise. I wish I could do that but because of the pain it augments it is impossible. After working with a physical therapist for six months, it appears that this was not helpful. On days I was feeling a bit better, the therapy had good results but on the days I could hardly move, the therapy was more painful and had no good result. I do find that therapeutic massage by an accredited masseuse is helpful but the relief is short-lived. I do it anyway every other week and look forward to it.
The last two weeks have been especially challenging as I have developed a rash all over my body. Much of it itches terribly. Saw the dermatologist, gynecologist, rheumatologist and my primary. All had different takes on the issue. None have a clue as to whether it is associated with the PMR. Since dealing with the rash, the PMR pains have gotten much worse. The gynecologist diagnosed a UTI which a few days later, after going on strong antibiotic, was proven negative by culture.
I try to keep negative thoughts at bay but it is very difficult. Looking for a pre eminent physician anywhere who will take me on.
Good luck to all of us.

Jan 27, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I was on prednisone for ten months after being diagnosed with PMR. After being weened off of the prednisone, I felt ok for a short time. My symptoms have returned with some added problems. Pain around “the pelvic girdle” is debilitating. I am unable to walk and the fatigue is limiting my normal life. The prednisone may have been a magic medicine but I am more concerned with the dangerous side effects such as bone weakening and skin thinning. I do take pain medication when I must but life as I knew it has completely changed.

Jan 24, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

Yes Sally, I can relate. I struggle every day but have vowed not to go back on prednisone unless I couldn’t move. The weight gain from the medication was totally unacceptable. I had to buy larger clothes and when I looked in the mirror I saw a “fat” face that didn’t belong to me. I will take a tramadol if the pain is really bad and I can’t even move but I don’t take it on a regular basis. Today is a good day and I have been able to move about within my home. Venturing out and participating in my normal activities (golf) is intermittent. Some days I can’t even sit at a table to play cards because my buttox and thighs hurt so much. My hip MRI shows a slight tear in cartilage. I am convinced that this is the result of the prednisone. My rheumatologist constantly wants to administer steroid by injection but after trying that twice with no good result, I won’t agree to that again. I am depressed and fed up with PMR.

Jan 24, 2018 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I have been in physical therapy for six months. The hope was that it would strengthen my core muscles and relieve the all over muscle pain. It helped for a while as long as I was still on the prednisone. Once i was weaned off the medication, the pain crept back. My blood tests show acceptable levels of inflammation, but my muscles tell me otherwise. I refuse to go back on the prednisone as the extreme weight gain and the bone damage to my hip were not an acceptable alternative to the pain. I take pain meds when I am really suffering and have had to cut many activities out of my life. The depression this illness has created as well as the pain is ruining my “golden” years.