I, too will be seeking alternative treatments. My first venture into this is an appointment with a nutritionist who is recommended by my primary physician. My primary and I are in agreement as to the avoidance of taking prednisone. In reading another post, I see that one person has been successful with physical exercise. I wish I could do that but because of the pain it augments it is impossible. After working with a physical therapist for six months, it appears that this was not helpful. On days I was feeling a bit better, the therapy had good results but on the days I could hardly move, the therapy was more painful and had no good result. I do find that therapeutic massage by an accredited masseuse is helpful but the relief is short-lived. I do it anyway every other week and look forward to it.
The last two weeks have been especially challenging as I have developed a rash all over my body. Much of it itches terribly. Saw the dermatologist, gynecologist, rheumatologist and my primary. All had different takes on the issue. None have a clue as to whether it is associated with the PMR. Since dealing with the rash, the PMR pains have gotten much worse. The gynecologist diagnosed a UTI which a few days later, after going on strong antibiotic, was proven negative by culture.
I try to keep negative thoughts at bay but it is very difficult. Looking for a pre eminent physician anywhere who will take me on.
Good luck to all of us.