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Posts (109)

Fri, Jul 5 1:21pm · Delayed pain after bone marrow biopsy?? in Blood Cancers & Disorders

I got through last night, no significant pain, and i finally slept, but once I got up this morning, I was uncomfortable and unable to sit in one position while having coffee. Took 2 Tylenol extra strength and went about my day. Driving hurt, but home now, cooking, etc and it's not bad. So weird…I don't understand why I felt all better, then it came on. Maybe giving my dog a bath set something back..I did have to lift him. Hes close to 70 lbs.
No worsening pain or discomfort, so I'm going to wait before i call drs. I have appointment again with my oncologist in about 3-4 months.

Thu, Jul 4 9:42am · Delayed pain after bone marrow biopsy?? in Blood Cancers & Disorders

I had it done at Mayo Clinic. I guess I can contact my care group, but I know its gonna be, you have to come in, maybe xray, maybe MRI doubt a simple diagnosis…So, I'm trying to give it time in case its something I did, and needs to heal. I know they said 1st week not to do anything strenuous, but this came on after 2nd week. Im kinda fed up with myself because its always something to bug me. It was just about completely all better, I wasn't feeling any discomfort…then BOOM!!
Thanks everyone…I'll post back in case I have to call. Was wondering if anything experienced this.

Thu, Jul 4 6:51am · Delayed pain after bone marrow biopsy?? in Blood Cancers & Disorders

I had a bone marrow biopsy in back hip on June 14th. By the 2nd week I felt almost completely better. Then for some unexplainable reason on the 17th day after, I had very uncomfortable pain around the area of biopsy and up towards my back left side waist. It seems to let up, and actually feels better walking, but sitting and during night I can’t find a comfortable position. Cant sleep.
I’m trying advil, or tylenol, and biofreeze. Tomorrow will be 3 weeks since biopsy.
No infection, no fever…could it be nerve pain? I saw my oncologist for follow up on the 27th, and I felt fine, so I never complained. I wonder if its something I did that’s making the area hurt? I did give my Lab dog a bath the day I noticed the pain, and lifted him in the tub, but I was already feeling healed.
Anyone experience delayed onset of pain after a bone marrow biopsy? What to do…I dont want anymore tests…hopefully itll pass??

Sat, Jun 29 7:00am · Grover's disease in Skin Health

My Dermatologist from Mayo prescribed Triamcinolone Acidtonide cream 1%. I've had awful rashes, wide spread since 2013. Thankfully, they come and go! But sometimes last for months. Last skin biopsy a year ago, shows resemblance to Grovers disease, but I have MGUS, which may contribute to on set. Usually I'll get some pop up rashes, which I get under control with the cream. If they're wide spread and I'm feeling sick from them, chills, exhaustion, tormenting itching, and lack of sleep, I'll apply the prescription cream, then wear a wet cotton tshirt (wet wraps), for about an hour, all recommended from my Drs, and take Hydroxyzine, and allergy pills. Side effects are miserable, but itching subsides. No hot water in showers, and told to use only Vanicream soap and cream. I do try my best to avoid lengthy sweats, but difficult here in Florida. As for Cilantro, I've tried eating bunches in a salad, but I honestly can't say it helped…but I will try it again should I experience a wide spread. Hope you all find steady relief!!

Sun, Jun 23 6:23am · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

@ann…not a big deal.
I didn't mean for anyone to go out of guidelines. Was simply a vocabulary definition…which I could easily Google…no concerns. Wishing you and your husband the very best! Have a great day!

Sat, Jun 22 9:00am · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

Oh, sure…not a problem. I asked because I read a post here about a patient with Predominant. Thanks!

Sat, Jun 22 6:42am · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

Can anyone explain the difference between Reactive and Predominant lymphoid nodules?

Sat, Jun 22 6:39am · What's the difference between Reactive and Predominant? in Blood Cancers & Disorders

Is there a difference in lymphoid nodules Reactive vs predominate?