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Posts (97)

Fri, Feb 1 4:54pm · Hemachromatosis... in Blood Cancers & Disorders

Hubby has high iron…its affecting his liver enzymes, and possibly more. Finally dr ordering a hematologist to test further. He had lots of blood work done this past week, we wait on results. Hoping its hereditary, and will require large blood draws, and nothing more serious. I looked up diet with people that have this disorder and I understand they absorb abnormal amounts of iron from certain foods. Non heme, and heme foods…if anyone knows about this, please talk to me and share your insights.

Fri, Jan 25 7:13am · Cancerous spot not healing?? in Skin Health

While at Mayo being examined for my rashes, a cancerous nickel size spot was removed on my back. It was basil cell, and said to be superficial. Four weeks later, it was nasty looking, with a thick black scab, and red border that spread out. I went to a local dermatologist, and they removed the scab, dr said it looked angry, and I applied ointment and covered it for 14 days. It seemed to heal ok, but its still red, and it hurts radiating out, and itches a bit. Four months later, it's still bugging me. I went back to local dermatologist, dr said just apply scar ointment. No further biopsy was done. She said she didn't have an answer as to why it hurts all around, but only that the scar tissue can be uncomfortable. Has anyone ever experienced after effects like this, for so long?? Before it was removed, I never even knew it was there.

Fri, Jan 25 6:59am · Grover's disease in Skin Health

I was prescribed steroid cream applied then wet wraps. I sometimes get it all over my body, so after cream applied, I wet a cotton t shirt, and leggings, wring out until just damp, and stay in them for 1 hour..3x daily. ..Dr prescribed. Not the most comfortable, but very relieving. I wear my husband's big terry robe over, as the wet wraps get cold. Also take Hydroxyzine and allergy pills when needed. My drs from Mayo clinic are adamant about gentle skincare, using only Vanicream bar soap, and body cream. Absolutely No hot showers. Diet is not my trigger point. In my case, its possibly blood condition related. Heat, and sweating may trigger an outbreak for me…yet sometimes it doesn't. I get more of a horribly itchy, blistering rash. Last full outbreak was soooo widespread, I felt sick with chills and exhaustion. My meds do help with symptoms, not a cure. Hope you get help!!!

Dec 30, 2018 · Holiday Feelings: Are They Merry or Stressful? in Just Want to Talk

The only thing I enjoy about holidays is first, the meaning…
Secondly, having the whole family together is a blessing. What bugs me is feeling forced to do certain things because it's a special day. Last Easter my very special dog was on his last days with bone cancer. Everyone assumed I was supposed to go about the usual BIG family dinner, all the fuss and cooking, cleaning etc. I was literally exhausted with uncontrollable emotions and sleepness nights sitting with my buddy, my pal, holding him, comforting him. Finally I just told everyone I'm not doing a thing but staying put right here with him and my husband, who's heart was literally broken. So, no one did anything. I have friends I always invite, all through the year, regardless of holidays, yet never ever ever do we get an invitation, not even to meet someplace out for a quick lunch. Yet I feel so badly not to invite them. I just dont get it…and I'm sorry for all us that feel the holidays stir up emotions. Shouldn't be that way. Personally, I'm thankful my family and I had a lovely Christmas, but I'm glad it's all over. Hubby and I are staying home new years, just us…and God willing, I'll cook us a special meal. All said…let's move on…dont look back, and pray for a healthy, peaceful 2019. Nice people here!!

Dec 26, 2018 · Holiday Feelings: Are They Merry or Stressful? in Just Want to Talk

@rkleinsmith , well said! That's why it's called CHRIST MAS.

Dec 21, 2018 · Holiday Feelings: Are They Merry or Stressful? in Just Want to Talk

I always get soooo many mixed feelings about holidays. I usually start out feeling great anxiety about getting everything done…cleaning, shopping, cooking, setting everything up, etc. I worry if I'm going to feel tired and fatigued. All the added expense and food prices are ridiculous. Sometimes I feel obligated to invite people outside of my family so they're not alone…then I stress how to seat everyone nicely so we can have an elegant dinner. After years and years of doing this, it always works out beautifully, and when I look across the beautifully set table and see my entire family, including my parents which are on in age (dad 91 !!) Its soooo worth it all, and I thank God I'm able to do it! But I feel guilty that I start out cranky and feel pressured…oh well.

Dec 21, 2018 · Tests for blood cancer ...the bills!! in Blood Cancers & Disorders

Just wanted to report back…I got a check from Medicare. Seems they sent the money to me, then i have to send the payments in. I'm honestly not sure if its 80 percent of the bill, it's too much paperwork to figure out. Hubby said just pay it, and it should balance out at some point. I dont understand all deductables, etc…and yet my S.S has dropped because of Medicare. There were also minor tests like manganese, think glucose, and 2 others they dont cover…i paid for those too.
Now my primary dr wants to do an annual blood test but i see some are repeats of what i just had, some I'm not taking it. I already showed him my current results, and only need a cholesterol test. I'm afraid Medicare wont cover another blood test…so I'll ask him again to just check what wasn't done. I agree with all of you about the added stress….i freak out when i see Mayo's mail.

Dec 7, 2018 · Tests for blood cancer ...the bills!! in Blood Cancers & Disorders

@gingerw , I'm going over every test. I'll keep you informed. Best to you!