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Posts (15)

Aug 1, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Yes, I was diagnosed by a neurologist after other atttempts, RA, lupus, ALS, etc. an intrinsic factor blood test proved PErnicious Anemia. This was done only after I took in material about PA from Mayo websites!! I am currently seeking appointment at Mayo in Minnesota to find about help for symptoms….tachycardia, spinal cord stenosis, physical and mental awkwardness, etc. thanks for asking!!

Jul 31, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Yes, I did 5 months of PT. Also anodyne electrical therapy. Neither made significant difference. Hot weather always makes neuropathy worse soak feel in cool water while I watch tv. Use lidocaine roll on for bottom of feet. That helps the most.

Jul 28, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

I have PN from pernicious anemia. Anyone else?

Apr 18, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you, John. Will search out a DO using the link you sent .

Apr 15, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I have peripheral neuropathy due to untreated pernicious anemia. B12 injections halt PA, but mine was undiagnosed until severe. Therefore nerve damage to peripheral areas will be with me forever. I have other pernicious symptoms also, but the neuropathy was the first. To diagnose PA, a blood test must be done to check the intrinsic factor in the stomach! It is not the common B12 deficiency. I take nothing for the neuropathy. Guys luck with yours. I’d like to see a good chiropractor or osteopath. How to find one?

Mar 11, 2018 · Need help! undiagnosed symptoms. Losing hope. in Autoimmune Diseases

Long shot: check for pernicious anemia with an intrinsic factor AB blocking blood test. You have some of it’s symptoms. Rare autoimune disease. Drs checked me for almost everything too. I brought in evidence from a Mayo web site about pernicious anemia. Good luck!!

Feb 22, 2018 · Diagnosed with pernicious anemia; my stomach distends after eating in Digestive Health

I would like to know if the intrinsic factor level blood test ever goes down. Do the red blood cells ever get back to normal. . I understand that this is s lifetime deal, but I want to understand more about it. I have B12 1 milliliter injections once a month.

Feb 22, 2018 · Diagnosed with pernicious anemia; my stomach distends after eating in Digestive Health

Any oral B12 does nothing to halt the progression of pernicious anemia. I gave monthly B12 injections.