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Posts (46)

Fri, Apr 24 9:39am · Liver transplant support group in Transplants

Best wishes for a good outcome.

Sat, Apr 11 12:14pm · Does age matter for liver transplant evaluation? in Transplants

11th transplant evaluation ? Why so many ?

Fri, Apr 10 11:48am · Liver transplant support group in Transplants

Hi. Thank you ! To update, I finally had an ERCP on March 18th. Five stents were placed in the bile ducts and I believe that has made a difference. Initially my whole GI tract was off kilter. I blame it on the increased bile being released. I am now back to baseline "new reality". Good news.

Sun, Mar 15 3:26pm · Liver transplant support group in Transplants

I trust Mayo. They have been in charge of my care since 2008 and I am still here after 2 liver transplants and awaiting a kidney. Best wishes !

Sun, Mar 15 8:24am · Liver transplant support group in Transplants

Thank you, Rosemary ! Very helpful.

Tue, Mar 10 10:52pm · Liver transplant support group in Transplants

I have always thought that the MELD score had very limited criteria. I was 12 for quite awhile and this is after 2 episodes of esophageal varices bleeding. I know it needs to be an objective measurement, but it is too limited, in my opinion. And regarding an apt to be seen by an MD, sometimes you have to be assertive as your own advocate. I am a retired RN and have been vocal and questioning all along this 12 year journey. Best Wishes.

Tue, Mar 10 11:03am · Liver transplant support group in Transplants

I also developed a tumor about 8 mos after diagnosis of stage 4 cirrhosis due to asymptomatic long standing Hep C. It was 5.5 cm and diffuse rather than encapsulated. The doctors quickly got me into a radiologic treatment called Theraspheres. It was a 2 part procedure which ended with implantation of radiated beads. The hepatology docs stated that this could be a silver lining to my dire situation. Well, I had a CT scan to measure the tumor. The reading was not successful, as it was blurry and white and could not be measured. A repeat CT was done, as the review board could not give me those "bonus points". The second was not able to be read, either. So I never did get those exception points. Three months later I got my transplant…..

Mon, Mar 2 12:30pm · Your gratitude changes because of organ failure... in Transplants

I can relate to those small beautiful moments that almost take your breath away. I tend to think it is a result of our journey, possibly influenced by our meds. I know that I had always considered myself to be compassionate and nonjudgmental of others. I see now that I wasn't so much. Seeing though a new lens has brought me more personal gifts that I sure did not expect.