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May 20, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

This little sister of TB is a strong bacteria that is hard to reach and hard to kill according to my niece who is in Epidemiologist and did her thesis on TB. We are finding out that we have to trick the bacteria in order to kill it. What no one can tell me is: why TB is so contagious and MAC is acquired, being from the same strain. And the plot continues….

May 20, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes, it did stop on its own for the most part. This is an intriguing little nasty bacteria. I have read some new studies from Universities studying Tuberculosis and They have developed a mimic bacteria that when the TB virus morphs into it, the good bacteria will eat the TB. This is just the beginning, may take awhile to get out. I really think the medical community needs to develop an Immunotherapy treatment for MAC. The body was created to fight this Avium complex bacteria. When the immune system is compromised it seems to have a hard time getting rid of the MAC that hides deep in the lungs and has a hard protective shell. We need to develop a way to boost our own immune system to fight this bacteria get rid of the antibiotic treatment!! Praying for BIG help on this.

May 20, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi again. It has been a long year!! My mother lives in Vegas and was visiting Flaggstaff, AZ when she started coughing up a cup of blood at a time. The hospital had her scheduled 3 times to get a lobectomy, "on her lower left lobe" and she refused because she could tell the bleeding had slowed way down and stopped. After 4 days in the hospital they sent her down to Mayo-AZ in Pheonix area. When the doctor at Mayo did a scope told her "Good thing you refused the lobectomy, you bleed was from your right middle lobe". This is how my Mother's MAC started showing symptoms for the 1st time. Please understand I have been a Paramedic in Emergency Medicine for the last 10 years and this one even boggles my mind.

Jan 18, 2018 · What causes the bacteria to grow in some people and not other? in MAC & Bronchiectasis

Thank you so much!! All this knowledge brings wisdom.

Jan 17, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I’m not sure if this is directed to me, kinda confusing. I have no secrets and all my emails are open. I send them privately because I’m new and havnt heard or read all the testimonies and don’t want to repeat this over and over for everyone else.

Jan 17, 2018 · What causes the bacteria to grow in some people and not other? in MAC & Bronchiectasis

You hit the nail on the head!! I’m thankful for your insight and experience since 2016. I have learned so much and have been able to pass it to my mom. She is doing well, but has a hard time reading and gathering information, so I’m trying to help out. I’m also trying to understand because I have the same precursors to getting this bacteria. It is great to see so many supporting each other here. God Bless you.

Jan 15, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

wow, This is good to know! My mother want into the hospital at 7000 ft because she started coughing up blood via a capillary bleeds and they set her up for a lobeectomy within 8 hours. She refused the lobectomy and they went in and cauterized her capillary; stopped the bleed. She came back down to 2000 ft and has been fine since. This makes me even more thankful she refused. I know this is a VERY different senerio, but the message for a lobectomy is still the same. Thank you for sharing.