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Posts (17)

Jun 10, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker, please let me know when your face book page is up. I follow your posts here but sometimes I find it difficult.
I live in Spring Hill Fl and I am really in need of good Dr’s who have knowledge on MAC with the cavitations and bronchitis? Not sure I spelled that last on correct. Does it take a long time to get into the Mayo Clinic? I did 1 year of the big 3 and I just could not continue the treatment 7 days a week!
Now I am horrified of what is to come next. My ID Dr has not treated anyone before me and my pulmonary Dr is very old school and I never got a clear answer as to if he has treated others like me.

Mar 25, 2018 · Antibiotic side effects in MAC & Bronchiectasis

@heathert thank you so very much for keeping me in your thoughts and asking your Dr. About my condition. I can now ease my mind a bit knowing it is not my medications, Thank goodness. Again I must thank you again for going out of your way to help a stranger. HUGS

Mar 24, 2018 · Antibiotic side effects in MAC & Bronchiectasis

@hearthert my arms and elbow on the left arm hurt when I extend it to far forward or back word or reaching up is getting to be nearly impossible due to the extreme pain. I also have the pain in my neck as well. This is making it very hard to sleep at night due to rolling on one arm or the other.
I am just so ready for this pain to be gone already. Lol

Mar 23, 2018 · Antibiotic side effects in MAC & Bronchiectasis

@heathert how long have you been on the antibiotics? I am concerned that if I do the injection for my shoulder pain that may not even be Tesla Ted to a roatercuff or possiable bursitis as suggested by my pain management. My goodness I can’t take anything it seems, that will not interfere with one of the 3 antibiotics I am one.

Mar 23, 2018 · Antibiotic side effects in MAC & Bronchiectasis

@jkiemen I have been suffering with this pain in my left shoulder for nearly 4 months now. I now have pain in my back as if it like a sheet of ice and it has started to break up into pieces. Best way for me to try to explain the wide spread pain. I also have pain in my joints off and on this past month. Thank you for your information and I hope we both can get threw this all better

Mar 23, 2018 · Antibiotic side effects in MAC & Bronchiectasis

Hello everyone I have a couple of questions I hope someone maybe able to help point me in the right direction. I have been on the “Big 3” antibiotics finishing up month 10. I had to go off the ethembul at the end of month 7 due to serious breathing issues. My question is this. I am still on Clarithromycin 500mg 2 times a day meaning 1 tablet in AM and another in PM. I also take Rifampin 300mg 2 times a day. One tab in the morning and the other in the PM. As prescribed by my ID Dr. I am now having extreme pain in my shoulder and my next to the point of not being able to lift my arm up high enough to do simple things like putting my hair in a pony tail or even shaving that armpit.
When I mentioned this pain to my ID Dr. He gasped and said I have had to take you off one medication so far and now….. you are asking me to take you off the other two?
I did not ask to be removed off the meds. I just told him my serious pain I was suffering from.
Has anyone else suffered this kind of pain due to the medications? Any and all information is so appreciated.
Hugs to you all.

Jan 28, 2018 · MAC antibiotics and side effects in MAC & Bronchiectasis

@windwalker
I would like be to see a ID Dr who has had more experience for sure. My problem is that I have no health insurance and so I am lucky to have the Dr’s I have because of the no insurance.

Jan 28, 2018 · MAC antibiotics and side effects in MAC & Bronchiectasis

@irene5
My biggest problem is I have no health insurance. I really do not think my ID Dr really knows what the eye Dr is dining and that is why he printed the type of eye exam I need for me to figure it out? Glad to know I am on the right track now. Thank you again