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Nov 29, 2018 · oxygen in MAC & Bronchiectasis

Have any of you been advised to use oxygen for shortness of breath?

Nov 29, 2018 · Extreme fatigue in MAC & Bronchiectasis

I have had bronchiectasis for 18 years and am at this point short of breath and have fatigue, but these things did not show up until about 3 years ago. I have had a cough right along, but on the whole did not suffer much until recently. So you may have many years before you develop these symptoms Who knows, by then there may be a cure ! I can still do 10 minutes 3 x a week on the treadmill (1.8 m/h) and 10 min. on the NuStep, which my pulmonogists strongly recommend.

Jan 14, 2018 · First Time and Terrified in Visiting Mayo Clinic

I do hope sincerely that you find help. Since I don’t have any help I will not waste any more of your time.

Jan 14, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

to all Connect MAC/Bronchiectasis members:  do any of you have oxygen at night, night and day, 24/7 ?  Just curious as to whether this is sometimes helpful.
Pat

Jan 12, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes, you sound a lot like me. Do a little, rest, do a little, rest, etc. I am in a stock club, too. I do go once a week to a painting group, but I don’t seem to paint at home. The trouble is, even though these activities involve sitting, you always have to get up and get something. It’s the same with cooking. Fortunately, my husband does most of the cooking. I have to spend a lot of time with my breathing activities – Vest machine, nebulizer, Acapella, cleaning equipment, exercise (I force myself to go to the Fittness Center, but it exhausts me). But I fear if I don’t I will be able to do less and less.

Jan 11, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes, I add about 1 ml saline to the 3 ml albuterol 4 times a day when I use my nebulizer. I’m not sure how much saline to use. As far as art, I have mostly done watercolor, but have done some oils and acrylics. It’s a hobby that is compatible with sitting.

Jan 11, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes, you are right, but the air contains dust, which is soil (especially Arizona, where I am) !